Backwoods Camping A Success!

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Date Joined Sep 2009
Total Posts : 1143
   Posted 8/29/2011 2:59 PM (GMT -6)   
I am extremely happy that I went. Hiking was very hard but my harnessed Siberian pulled me through the really tough spots. The first day we hiked for about 3 hours, canoed for an hour to our base camp site, set up camp and had a great swim.
Camping with an ileostomy was actually easier than camping with a normal digestive system, a lot easier to clean up after in the forest.
I used the Hollister 2-piece extended wear barrier and bag. The tapeless barrier came off the first time I went swimming. The barrier with tape stayed on through four more days of hiking, canoeing and swimming. I have ordered Sure seals and the ostomysecrets swim wrap for my next trip in two weeks.
I did just fine with hiking and camping food. Water was extremely important. I drank more water than I thought possible.
I am normally in pain almost 24/7. The pain came and went during the trip. Every day I seemed a lot stronger and accomplished more than I thought I could.
My dog was in seventh heaven to be out with me. In the canoe, he would tuck his head under my arm, trail a paw in the water and just smile while I paddled.
I cannot wait for our next trip.
Diagnosed 1987 with lower left colitis. Hospitalized often. Mega toxic pan colitis Dec. 1999. Perforated colon and total colectomy April 2011.

Veteran Member

Date Joined Dec 2010
Total Posts : 3332
   Posted 8/29/2011 4:13 PM (GMT -6)   
Sounds wonderful, great for your spirits and your confidence. I'm glad you went and that it went well.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

Veteran Member

Date Joined Feb 2010
Total Posts : 720
   Posted 8/29/2011 6:15 PM (GMT -6)   
Yay!!! I am so happy for you. My eyes started to tear up because I know how much it means to overcome fears and get out there and do the things that you love again. I was surprised also at the way my strength seemed to improve exponentially each time I went out on a trip. Though we do have to wander out into the forest more than a person with a normal digestive system, it is easier. I love how I can get around to it when I feel like it... not having urgency is pure bliss!

The image of your dog happy in the canoe made me smile:) I have no doubt at all that your dog knows that something has been up and is happy to have you outside with him again.

Here's to many more fun trips!

Hope your pain continues to get better too.

-39 years old
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

Veteran Member

Date Joined Oct 2009
Total Posts : 1054
   Posted 8/29/2011 8:13 PM (GMT -6)   
I'm so glad to hear it went well!!
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 8/29/2011 9:18 PM (GMT -6)   
sounds like you had a great time!  stuff like that is what makes surgery worth it!

Veteran Member

Date Joined Oct 2008
Total Posts : 938
   Posted 8/29/2011 9:37 PM (GMT -6)   
This really makes me happy for you. I'm so glad it went well! :-)
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Steps 2 & 3 TBD

Veteran Member

Date Joined Sep 2009
Total Posts : 1143
   Posted 8/30/2011 10:01 AM (GMT -6)   
Blueglass, 80sChick, summerstorm, and run4pancakes,
Thank you for your kind posts. Facing my fears and succeeding always feels invigorating. There is a large forest fire where I wanted to go next. We may go rock climbing out in the desert instead.
Here's to happiness! tongue

Veteran Member

Date Joined Sep 2009
Total Posts : 1143
   Posted 8/30/2011 10:16 AM (GMT -6)   
Thank you for your inspiration and advice. Your blog helped me find the strength to do this trip.
My dog definitely knows about ulcerative colitis and pain. When he knows I am in pain, he stays right next to me and won't let anyone but my husband near. I had a moderate flare occur while expedition dog sledding for two weeks last year. All the dogs on my team snuggled around me at night. Good thing I didn't try to use a tent! Normally they want to sleep where they can sleep individually in little snowcaves. We have to stake them down so they don't go tearing off after wolves, deer or bears. That trip, they just stayed right by me and didn't show any interest in the deer herd that was following us.
I can't wait for our next trip!

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 8/30/2011 7:47 PM (GMT -6)   
Cynthia, you're an inspiration!! yeah I'm thrilled that you had a great trip and that you learned some new tips for your next one. And, your dogs sound amazing!! You go, girl!!

Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Veteran Member

Date Joined Jan 2006
Total Posts : 768
   Posted 9/1/2011 11:36 PM (GMT -6)   
Glad things went so well. It's great that you make the effort to keep active. Let us know all about your other adventures!

Veteran Member

Date Joined Feb 2006
Total Posts : 629
   Posted 9/2/2011 4:26 PM (GMT -6)   
glad you enjoyed yourself!!
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis
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