well, me and my doc have decided to do a temporary loop ileostomy. THe plan is to do it for 3-6 months and attempt a reversal down the road based on defecographies/manometry/plevic floor mris we will take at different intervals to assess progress.
Right now the only thing wrong based on all these tests is my external sphincter paradoxically contracts. I have been working with a physical therapist to try and fix that, but I am constantly going and my bottom/anus is always cut up/bleedingirritated from going so much and having to strain that the muscles are always tense and tight, and cant get a chance to relax (the first month or so after surgery things were fine, I just didnt come off the low residue diet fast enough so my bottom got irritated and all this started due to constant liquid bms over time).
The ileostomy will also allow me to get some sleep and gain some weight (this should be easier for me even with a loop as my surgeon said with skinnier people you can find a loop of small bowel farther down and use it, where you generally have to pull a loop from higher up on heavier people). The added stress from the lack of sleep and lack of food variety is also something that is just making it hard to get things to relax.
I will also be doing progressive anal dilation to help open up the external sphincter and loosen the PR muscle to some degree.
If I dont really make any great progress we may not even reverse it, so this will also give me plenty of time to get used to living with an ileostomy if that happens.