That's great that you too met up and that you shared. I met up with Blueheron in Colorado this summer, and that was wonderful.
I always felt like being sick made my life so much smaller. One of the unexpected benefits of having an ostomy is that it gives such a strong bond w/others who have them too.... just feels like it's a club that I never thought I'd join, but once I was in, it made my world bigger....
Hope to hear about more meetings...
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery