this makes it all worth it

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summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 9/3/2011 9:53 AM (GMT -6)   
Sitting here eating a huge bowl of muscadines and scupperdines makes surgery soooo worth it! One of the stupid little things that make me remember why I did it, before one made me sick for hours. Now, I eat them like crazy! I literally ate 4lbs in 3 days last year! Just wanted to share that! I've seen we have a few more people contemplating or just had surgery, and even though its something little, its something to be very grateful for! And now, off to eat a huge bowl, lol

Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 9/3/2011 4:16 PM (GMT -6)   
what the heck are muscadines & scupperdines???? I love your attitude, it's helpful! I plan to eat ice cream 3 meals a day after surgery. Maybe a little something else thrown in for good measure.
diagnosed 2002
Asacol
Remicade-10mgs/kg- from 4/07 thru 1/10
Humira
Imuran- 150mgs/day
homemade kefir, probiotic supplement, turmeric

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 9/3/2011 5:37 PM (GMT -6)   
Summerstorm
You eat what???

Dan

worried mom 1
Regular Member


Date Joined Mar 2010
Total Posts : 172
   Posted 9/3/2011 5:49 PM (GMT -6)   

 

Thank you, I thought I was the only one who didn't know what she was eating lol. 

 


ByeByeUC
Veteran Member


Date Joined Feb 2011
Total Posts : 4546
   Posted 9/3/2011 6:29 PM (GMT -6)   
Not sure what muscadines are but it's soooo nice to be able to eat ice cream again. Oh, and drink coffee!!! Boy did I miss my coffee when I had UC. Actually for that matter, it's nice to be able to eat EVERYTHING again!
DX UC - in 2005 when I was 37
Tried every drug-even Remicade-Tried diets-nothing worked
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC!!! Very happy with my results of this surgery!

nettiemoore
Regular Member


Date Joined May 2010
Total Posts : 89
   Posted 9/3/2011 7:15 PM (GMT -6)   
I had to go and google them, YUM.
Sana, 21 years old
UC since September 2008, diagnosed in April 2010

Going for a J-Pouch in 3 steps!
Surgery #1 - May 25th, 2011
Surgery #2 - August 24th, 2011
Surgery #3 - ???

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 9/3/2011 7:21 PM (GMT -6)   
I had to google too -- they're grapes.

I just went apple and peach picking today, and I found I could actually eat some raw, fresh picked apple..... haven't had that in years..... so, so worth it!

Eva Lou, I hope you'll enjoy your ice cream! It's one of the things I'm really enjoying after surgery..... But it's amazing how fast I can put on weight now that my diseased colon is gone....
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/3/2011 9:10 PM (GMT -6)   
They are like grapes on steroids! They are 2 or 3 times the size of a regular grape and way sweeter. They are sooooooo good!
I did the icecream diet too, my clothes didn't fit, lol. Then strawberries got in season and I did a strawberry shortcake diet 3 a day makes for really bad heartburn :)
But nothings as good as muscadines and scupperdines! I think they are only in the southeast us, which is why y'all don't know what I'm talking about, I should have explained I didn't think about that when I made my post. and I'm so excited I planted three vines 4 years ago and I think I'm gonna get about 40 muscadines this year!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/3/2011 9:10 PM (GMT -6)   
They are like grapes on steroids! They are 2 or 3 times the size of a regular grape and way sweeter. They are sooooooo good!
I did the icecream diet too, my clothes didn't fit, lol. Then strawberries got in season and I did a strawberry shortcake diet 3 a day makes for really bad heartburn :)
But nothings as good as muscadines and scupperdines! I think they are only in the southeast us, which is why y'all don't know what I'm talking about, I should have explained I didn't think about that when I made my post. and I'm so excited I planted three vines 4 years ago and I think I'm gonna get about 40 muscadines this year!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 9/4/2011 2:46 PM (GMT -6)   
Can you eat all that skin from grapes??? any seeds in those 2 types?

I have gotten the red and green seedless grapes and hubby will eat some but if he has too many he will eat them but spits out the skin as he doesn't want to overload himself with the skin. (Of course this is done in the privacy of our home with nobody around...lol). I have been getting the large delicious George peaches and nectarines but I take the skin off and serve it to him in sections. Guess I am a bit paranoid still.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 9/4/2011 6:34 PM (GMT -6)   
So UC wife, you're not peeling the grapes and feeding them to your hubby? Just kidding.....

I have had a few grapes w/the skin on (being lazy) and they've been fine, haven't wanted to push it. I also started just leaving the skin on w/peaches and nectarines and that's been fine. I do find that if I eat too many peaches/nectarines (really tempting because they are so delicious and I couldn't eat them for a few years pre surgery) that I just have lots and lots of output.... no issues, and it's not runny or anything, just extra emptying.

I just had a raw apple for the first time yesterday, and I peeled that, just didn't seem like a good idea to eat the peels. But I can't even see the peels in the output from the other fruits mentioned.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/4/2011 6:45 PM (GMT -6)   
You can't eat the skin on those its way too thick, and its really bitter if you chew the skin. You just bite the top and suck the insides out, which I realize sounds disgusting. And yes they have seeds, but very big seeds, its easy to spit them out. I don't usually eat the pulp in them, I never have. They aren't the same consistency as regular grapes on the inside they are smushier. Maybe that's why they are so much harder on the outside?
I had some good peaches today, but I take the skin off its too furry to eat! And I love apples, but they give me huge amounts of really watery output that smells horrible! I eat them anyway though, lol.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 9/4/2011 7:22 PM (GMT -6)   
If the piece of fruit is large we split it. We never liked the skin on peaches so opt for nectarines usually instead. The Georgia peaches have been incredible so we have been having them too.

Peeling & feeding him the grapes...lol....as much as I tend to spoil him that would be over the top...lol.

He does like sweets way too much...I need to remind him about the fact it impacts the output frequency as well as adding on the pounds. For so long he ate hardly anything so I don't want to nag too much either. Getting to the point that there has to be a better balance too as he gave away all his bigger clothes and vowed he would not go back there.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 9/5/2011 7:48 AM (GMT -6)   
You guys are cracking me up! Peeling grapes and feeding them to your hubby... hilarious!! I love to be able to eat salads again and spicy food and Italian... basically everything... without being sick and in pain anymore. Life without IBD is very, very good!! :-)
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 9/5/2011 10:49 AM (GMT -6)   
ByeByeUC
Strange. You said that you can now drink coffee. I had UC in remission for 30 years with Azulfidine. Then I STOPPED drinking coffee and the UC came raging back. Then I find out that caffein and nicotine are known to help keep UC in remission. Never in remission again, and here I am on this forum.


Dan

rich96
Regular Member


Date Joined Jul 2011
Total Posts : 216
   Posted 9/5/2011 2:01 PM (GMT -6)   
I am loving being UC free! Only just over a week since my surgery but I would definitely agree that being able to drink coffee again is amazing. I used to get really bad pains and cramps. Looking forward to enjoying all the other things I used to miss out on! :-)
Male, 27.
DX UC (Pancolitis) 2004
6 exciting hospital stays in 7 years
Step 1 of 3 j-pouch surgery: 27/08/2011
No more UC!! :-)

run4pancakes
Veteran Member


Date Joined Oct 2008
Total Posts : 938
   Posted 9/9/2011 8:03 PM (GMT -6)   
I do love having my coffee back in my life! :-)
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Step 2 10/20/2011, Step 3 TBD
http://life-takes-guts.blogspot.com/
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