We are being released from the hospital this afternoon! Brandon is doing great. Eating solid foods and loving every minute of not running to the bathroom with cramps. Brandon is UC FREE! He has taken total ownership of the colostomy bag and asks for very little help from me. Last night, six of his friends (girls and guys) visited with him and they were all joking with him about it and making him laugh. He isn't quite sure that he is ready to go back to school with it yet. The Cleveland Clinic is amazing and I couldnt imagine being anywhere else.
@Rachel and Rachel's Mom, thank you for reaching out to Brandon and I (and to everyone else that has). You have made a tough situation much more bearable for us. So glad to know that you are out there for help with any questions. The support on this website is amazing!
thank you for the info on the Teen support site yodaa.org. I will definitely look into it.
@Worried Mom and Collilcat...I am sure that I will be in touch with questions!!
Question: is there some sort of a pill that can be put in the bag to eliminate some of the odor? I think that is the worst part. He has no problem emptying the bag but sometimes the odor just about knocks him out!
Thank you all for all of your support!! Now I am going to go and update our Profile
14 yr old male, Diagnosed February 2011. Phase one of 3 stage surgery on 8/30/11, Total abdominal laprascopic colectomy and ostomy. UC FREE! No meds.
Previous meds included: Remicade, 6MP, ,Poly-Iron, Canasa, Asacol 800HD, Colazal, Levsin, Pepcid,Sulfasalazine,Prednisone