Ileostomy - what to eat in early days post-op

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Bellydonna
Regular Member


Date Joined Jul 2006
Total Posts : 132
   Posted 9/4/2011 4:59 PM (GMT -6)   
Hi all,

I usually post over on the UC board, but am here for a friend. She has recently been diagnosed with rectal cancer (stage 2 or 3) and just had an ileostomy done on Tuesday. I want to make her some pre-prepared dinners that she can eat and that would be appetizing. Does anyone have any suggestions? I know some other friends have dropped off some meals, but she can't eat any of them because of the ingredients.

Thank you in advance.

Bellydonna
35 year old female, diagnosed with UC in 2006.
Prescribed 5 mg Salofalk suppositories - Mezavant (4.8 gr/day) started in November/10. Tried Betnesol enema (a.k.a. Entocort) in mid-Nov/10 with no success and switched to Budesonide enema early December/10 - horrible systemic side-effects discontinued mid-Jan/11. Current meds: 30 mg of Pred down from 40 (started mid-Jan) and 4.8 gr. Mezavant

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 9/4/2011 5:42 PM (GMT -6)   
What did the others drop off that did not work well? I started on easy foods like yogurt, scrambled egg, pudding. Be careful of too much sugar though as this will increase her output. Good luck. Rosemary

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 9/4/2011 6:09 PM (GMT -6)   
I made beef or chicken vegetable soup and blended it. That was nutrious and yummy.

I just found if my stomach had to work too hard I didn't feel good for awhile. I had the same surgery for the same reason and wanted to make sure I got lots of vegetables however would be easiest for the body. Since it takes a while before I could chew them up and not have them hurry thru intestine too fast.

You're a good friend!
Those things we keep trying to do get easier not because the feat gets easier but our ability to "do" gets better.
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
6 Grown kids, grandkids and a great husband to keep me busy

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 9/4/2011 6:58 PM (GMT -6)   
It's important to get a lot of protein, that's what helps you heal. I ate white fish, eggs, smooth peanut butter, and after a bit, cheese for protein (I hadn't been able to eat dairy before surgery, but I was OK). Chicken breast is supposed to be good too, but I didn't eat that. I also had a lot of protein shakes to supplement.

Other things I ate were white noodles, white bread/bagels, potatoes (peeled), crackers, and lemon sorbet.

Not sure how any of that goes in a dinner you're making -- depends what she likes.... it might be good to get things to nibble on too.

You are a good friend, I agree.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/4/2011 6:58 PM (GMT -6)   
She just needs to stay away from fresh fruits and veggies, stringy meats, nuts and popcorn, for now.
I ate cheese ravoli everyday for about two weeks, that's just what I wanted.
And its most important that she drinks A LOT of water getting dehydrated is very common at first, and can cause problems with blocakges.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Bellydonna
Regular Member


Date Joined Jul 2006
Total Posts : 132
   Posted 9/4/2011 10:55 PM (GMT -6)   
Thank you, everyone. I think people have been making things like chilli (with beans and spices) and casseroles with corn and other hard to digest veggies. I figured that things that I would be able to eat and process during a flare would probably be the sorts of things that she should be eating.
35 year old female, diagnosed with UC in 2006.
Prescribed 5 mg Salofalk suppositories - Mezavant (4.8 gr/day) started in November/10. Tried Betnesol enema (a.k.a. Entocort) in mid-Nov/10 with no success and switched to Budesonide enema early December/10 - horrible systemic side-effects discontinued mid-Jan/11. Current meds: 30 mg of Pred down from 40 (started mid-Jan) and 4.8 gr. Mezavant

Ironmum
Veteran Member


Date Joined Oct 2010
Total Posts : 776
   Posted 9/5/2011 1:23 PM (GMT -6)   
Hi Bellydonna.. what a kind friend you are! I think thats lovely that you're thinking of her.

For the first few weeks it's almost the opposite of what you'd consider a healthy diet. Things that are easily processed and low in fibre and volume are the way forward. Think white toast, jam, yoghurt, custard, crackers etc.

The first few days/week, she'll probably only want to have liquid stuff, moving onto jelly, ice cream, yoghurt, smooth soup, crackers, white toast, cornflakes etc. I craved pureed/stewed apple and pear with custard after a week or so - so having some pots of stewed fruit in the freezer which she could heat up in the microwave would be great.

After a week or so she could try some light chicken or fish with rice or mashed potato. Like the others have said, stay away from high fibre, heavy meat, stringy stuff and high volume. She'll only want small portions, so don't be upset if she doesn't have much appetite. Chicken or tomato soups would probably also work well, but again all small portions. A box of snacks and nibbles would be a great thought too.

Well done for being a good friend. X
Sarah - 39 year old mum of 2 boys, runner/triathlete from UK
June/Oct 2010 - Peritonitis/perforated diverticulitis. Sigmoid colectomy, temp ileo then reversed.
DX Colonic dysmotility.
July 2011 - Permanent end Ileostomy after begging surgeon to put it back
Follow my blog - http://bagthatruns.blogspot.com/
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