MotherofTeenwithUC- That honestly means so much to me! I have had others tell me that I am inspirational, but it is slightly different to hear it when coming from someone who understands exactly what it takes! So I thank you immensely for that :)
Please let Brandon know that he can do anything he puts his mind to. I truly believe that. My senior quote in high school, when my health problems started to arise, was "If you believe in it, fight for it." He will be such a stronger person when he is older for going through all of this now. While I would never wish any of these problems upon myself, I am happy for them because they have given me the chance the view life and other things differently.
I actually have realized that my personal stories may be able to help people. I have always wanted to be a motivational speaker to help inspire others. As of the last few weeks I have acutally started to form a new foundation (?) in my mind. Since I have been sick, I have kept all of my hospital wrist bands as a kind of momento from each visit. Not sure if this would ever come to fruition but I have thought of the idea of having others donate their wrist bands to my new organization and link them together into a chain. 'Chains of encouragement, support and hope.' The idea is that the chains would include links from people all over the country....supporting the idea that there are others going through the same thing as me, I am not alone.
I would call it something like "Choo Choo Chains" after the Little Engine that Could, because he could do anything he put his mind to! My two main ideas to get across would be that, 1. You are not alone and 2. You can do anything you put your mind to. I would donate the chains to hospitals that had children or young adults having trouble getting through their stay. Any type of encouragement always helps! If I could get the individual chains donated, I would also ask for an optional mini biography on the patient on the chain, to give some background and some identity to the chain. 'You are not just a wristband or an ID number; you are a person, a patient and have a story, too."
Hahaha, if you can't tell my thoughts are a little all over the place with this, but it is something I would like to start up. We will see what happens! :)
Please let me know if Brandon ever needs anyone to talk to about anything! Even just as a pen pal to talk about his favorite video games or anything, I'm there! I really do love to give support to anyone in anyway I can- I think it's so important! I am going to specifically include my email in my profile right after this to make sure I can be contacted!
I wish you and Brandon the best with everything! He is truly a trooper with wanting to go to school so soon! I give him credit! :)
Sarah, 21 y/o.
Thyroid Cancer, Crohn's Disease w/ Severe Perianal Involvement, low blood pressure w/ syncope involvement
Current rx: Celexa, Lomotil, Pentasa, Hyomax, Klonopin, Prednisone, Synthroid, Zinc, Multivitamin, Calcium w/ Vitamin D, Augmentin, Fentanyl, Dilaudid, Ambien, Celebrex, Depo Provera, Align, Zofran, Lansoprazole
Past rx: Remicade, 6MP, Flagyl, Cipro, Entocort...many more