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Jackie_0mg
Regular Member


Date Joined Sep 2011
Total Posts : 427
   Posted 9/4/2011 4:48 PM (GMT -6)   
so i have been reading a lot of peoples experinces on here and im somewhat fearfull and somewhat not. Im excited to get the sugery so i wont have these flare ups from my UC every other year but the recovery time seems so long. As ive said im a seniors and the past 3 years i didnot care about school and this year IAM i have started off to a good start!!!! but i hea recovery time is 3-4 weeks thats a long time for me all i can think about is SCHOOL -SCHOOL- SCHOOL. and graduating on time im concedering the homeboun (having a teacher come to my home).... i just dont know each day i came closer to my sugery date (October10) i get more nervous . shakehead on a diffrent /but same note im wanting my best friend to visit me in the hospital she lives in ohio im in indiana were booth in school she can only miss 3 days . so idk if i want her to be there when i go to sugery or during my healing process .what do you all think
 

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 9/4/2011 5:16 PM (GMT -6)   
I think have her come about two weeks after you have surgery. I felt way too awful to have visitors while I was in the hospital. When I got home and didn't want to sleep all the time I wanted friends to talk to and visit.

My best friend came from Utah(I live in Canada) and stayed with me for two weeks. I was by then 4weeks out and feeling good enough for short walks and not sleeping half the day. We watched movies, walked (which you need to do a lot of after surgery) and it was great. I never will beable to thank her enough for that.

Hope your surgery goes well. Being way younger than me when you have this will probably make healing shorter than mine. Will pray it all goes well for you.
Those things we keep trying to do get easier not because the feat gets easier but our ability to "do" gets better.
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
6 Grown kids, grandkids and a great husband to keep me busy

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 9/4/2011 5:47 PM (GMT -6)   
It's great that you're focused on school, and that focus will help you catch up with whatever you miss. Just think how much easier it will be to do well in school later in the year when you feel better and don't have to worry all the time about running to the bathroom etc. Three or four weeks in Oct should not make you graduate late.

I agree w/Trigirl -- you will appreciate having your friend there more a little into your recovery. If she comes for the surgery, you'll probably be asleep for the majority of her visit, and you might not feel like talking etc.

One thing that I did that you might like to do -- I had people send things to a friend to make a "surgery book" for me. I knew I probably wouldn't want to see people, but I also knew I would want to know they were thinking of me and wouldn't want to be too lonely. So people sent me jokes, cartoons, poems, quotes, notes, pictures, etc. and my friend put them all in a note book -- it was a surprise for me, I didn't see it until after surgery. It was really nice to have ..... maybe your friend could help you with something like that before surgery. It was also nice because I knew it would be waiting for me.... something to look forward to. It also gave people who wanted to help me something concrete to do.

It's really normal to be nervous about something like this..... I think all of us were, even if we were happy to have the surgery.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

RiddleMeThis
Regular Member


Date Joined Nov 2010
Total Posts : 269
   Posted 9/4/2011 10:33 PM (GMT -6)   
I think you should be fine regarding school! I'm a senior in college this year myself and also looking to graduate. Back in 2010 I underwent multiple surgeries, including a thyroidectomy for cancer, fistualaotomy and setons for an abscess, an ileostomy and multiple surgical clean-ups of my abscess. Not only am I still graduating on time, but I may be able to graduate with honors as well. If you put your mind to it, you can accomplish anything you want to; this is definitely something doable!

Now, if I was you, I would makecertain to contact my professors and make them aware of your situation. Most should be incredibly helpful. You could ask for extentions on assignments, etc. What I see as being most hel[pful though, is asking what material you are going to cover while you are away. That way you could keep up with your reading and possibly said over any assignments via email. My school uses Blackboard and a lot of teachers gave us online quizzes on there. As long as I knew what to read, that made it incredibly easy to work on assignments!

You can do it! And we are all here to support you! If you ever need any advice or anything from someone around the same age, let me know! :)

MotherofTeenwithNoUC
Regular Member


Date Joined Mar 2011
Total Posts : 227
   Posted 9/12/2011 6:38 PM (GMT -6)   
I just have to say that you are truly an inspiration to your peers.  You should take such pride in your ability to inspire others through your personal experiences.  I just want you to know what a positive impact you have on others.   I have had Brandon read some of your posts and want you to know that YOU DO MAKE A DIFFERENCE in the lives of others.
 
Thank you!!! yeah
MotherofTeenwithUC
14 yr old male, Diagnosed February 2011. Phase one of 3 stage surgery on 8/30/11, Total abdominal laprascopic colectomy and ostomy. UC FREE! No meds.
Previous meds included: Remicade, 6MP, ,Poly-Iron, Canasa, Asacol 800HD, Colazal, Levsin, Pepcid,Sulfasalazine,Prednisone

Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 9/12/2011 7:03 PM (GMT -6)   
Jackie_0mg...

Dillon was also in his senior year of high school when he was SO sick....I think he missed over half of it. His principal and teachers were wonderful. It is amazing how supportive people will be when they know that there really is a problem. Also, (and sorry if I am understanding wrong...I think you are in high school), when you apply to college or university there is a section to fill out explaining what you have been through during your final year and why your marks might not be as high as you would like. We were told that this made a 5-7% difference in how the colleges look at your marks. As well, most colleges are VERY impressed to see what you have been through and how you have dealt with everything....It makes you so much more mature than someone else who is applying.

The timing of Dillon's surgery worked out that he had his first surgery almost to the day that he should have been starting university. He was accepted and then deferred his admission for a year while he went through the surgeries....for him this worked out really well.

As to your friend visiting....I think it depends how close of a friend she is. Right after surgery you would only want the people closest to you there.....a week or so down the road it might be a great distraction to have a friend there.

Wishing you all the best,
Cathy
Mom to Dillon (age 20) who had three major UC flares over two years....Very sick. Colectomy Sept/09, J pouch built Jan/10 and take down Feb/10. Now out living life at University and doing great. NO MEDS

RiddleMeThis
Regular Member


Date Joined Nov 2010
Total Posts : 269
   Posted 9/12/2011 10:24 PM (GMT -6)   
MotherofTeenwithUC- That honestly means so much to me! I have had others tell me that I am inspirational, but it is slightly different to hear it when coming from someone who understands exactly what it takes! So I thank you immensely for that :)

Please let Brandon know that he can do anything he puts his mind to. I truly believe that. My senior quote in high school, when my health problems started to arise, was "If you believe in it, fight for it." He will be such a stronger person when he is older for going through all of this now. While I would never wish any of these problems upon myself, I am happy for them because they have given me the chance the view life and other things differently.

I actually have realized that my personal stories may be able to help people. I have always wanted to be a motivational speaker to help inspire others. As of the last few weeks I have acutally started to form a new foundation (?) in my mind. Since I have been sick, I have kept all of my hospital wrist bands as a kind of momento from each visit. Not sure if this would ever come to fruition but I have thought of the idea of having others donate their wrist bands to my new organization and link them together into a chain. 'Chains of encouragement, support and hope.' The idea is that the chains would include links from people all over the country....supporting the idea that there are others going through the same thing as me, I am not alone.

I would call it something like "Choo Choo Chains" after the Little Engine that Could, because he could do anything he put his mind to! My two main ideas to get across would be that, 1. You are not alone and 2. You can do anything you put your mind to. I would donate the chains to hospitals that had children or young adults having trouble getting through their stay. Any type of encouragement always helps! If I could get the individual chains donated, I would also ask for an optional mini biography on the patient on the chain, to give some background and some identity to the chain. 'You are not just a wristband or an ID number; you are a person, a patient and have a story, too."

Hahaha, if you can't tell my thoughts are a little all over the place with this, but it is something I would like to start up. We will see what happens! :)

Please let me know if Brandon ever needs anyone to talk to about anything! Even just as a pen pal to talk about his favorite video games or anything, I'm there! I really do love to give support to anyone in anyway I can- I think it's so important! I am going to specifically include my email in my profile right after this to make sure I can be contacted!

I wish you and Brandon the best with everything! He is truly a trooper with wanting to go to school so soon! I give him credit! :)
Sarah, 21 y/o.
Thyroid Cancer, Crohn's Disease w/ Severe Perianal Involvement, low blood pressure w/ syncope involvement

Current rx: Celexa, Lomotil, Pentasa, Hyomax, Klonopin, Prednisone, Synthroid, Zinc, Multivitamin, Calcium w/ Vitamin D, Augmentin, Fentanyl, Dilaudid, Ambien, Celebrex, Depo Provera, Align, Zofran, Lansoprazole

Past rx: Remicade, 6MP, Flagyl, Cipro, Entocort...many more
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