Painful discharge from disconnected JPouch

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ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 9/4/2011 8:14 PM (GMT -6)   
I know the topic of mucous discharge has been covered many times and I spent the last hour going back over all of the posts i possibly could trying to find some insight on what my issue could be and who to relate to ... no luck :(

I've had my end ileostomy now for a year and had my JPouch disconnected because of chronic pouchitis. I've been doing well without any major issues at all ... until now. I'm getting a LOT of yellowish/pinkish discharge everytime I go to empty my pouch. There is a really sharp pain in my rectal area which feels a lot like the painful sensation when I had my JPouch connected. It's that painful sensation of having "to go" in a hurry, when I don't even have anything connected.

This has been going on now for about 6 - 8 weeks. about 3 weeks ago I had to take a round of Bactrim antiobiotics because I had a terrible throat infection (wonders of a child starting school :)). When I was on the round of Bactrim I think I was getting better, but then it all started to come back.

I have a pouchoscopy set for this coming week, I cannot take the pain. I have no idea what is going on but my feeling is that my JPouch is either infected or I have cuffitis or something along those lines.

I've tried canasa suppositories but when I try to insert them I bleed, and they don't go in easy (they usually do).

Anyone experienced this or know what this could possibly be?

Thanks in advance.

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 9/8/2011 9:27 PM (GMT -6)   
Bump .... anyone?
Have a pouchoscopy scheduled for tomorrow, I'm cramping a lot and noticed some blood with mucous today. Not good :(

ducridr
Regular Member


Date Joined Apr 2008
Total Posts : 139
   Posted 9/8/2011 9:36 PM (GMT -6)   
I had similar issues when I had my ileos - esp my end.  My doc said that at the time I still had my rectum and it still had UC which was creating blood and that blood is one of the most irritating things for your rectum/anus and makes you feel like you still have UC (even after everything was gone) and have to go but for me it was worse because it felt like it was spasming (painful for me).  Once the blood had passed I felt better...until it happened again.
 
I'm guessing it's the blood causing the pain and UC feelings.  The question that will be answered by the pouchoscopy is where is the blood coming from.  It could be pouchitis/cuffitis or a stricture.  I hope it's something that's easily taken care of.

Ducridr - 37 - female

Diagnosed w/ severe pancolitis 11/20/2007
J-Pouch surgery #1 of 3 on 8/21/2009!!!
Surgery #2 - 1/4/2010
Surgery #3 - 3/23/2010

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 9/9/2011 7:50 AM (GMT -6)   
Blood and mucus are normal. Pain is not. Good to hear you are getting a scope.

Sue

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 9/9/2011 4:03 PM (GMT -6)   
Had the scope today and already feel much better ... anyone ever experienced this from a diverted pouch? After the drainage ... I have no more spasms or pain.

Upon performing the rectal exam, a soft filmy web was identified at the ileal pouch anal anastomosis. It was easily dilated with index finger. Insertion was followed by drainage of greenish brown fluid, non-foul smelling. Pouchoscopy revealed mile pouchitis, punctate ulcerations, and mild loss of vascular markings. Biopsies of the pouch and the anal transition zone were obtained.
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