Hi, I suffered from ulcerative colitis for many years trying all kinds of diets, different meds etc.. I finally resorted to taking prednisone which led to MANY complications.....broken ankle, diabetes, high blood pressure, & major weight gain. After my last flare up my GI referred me to a GI surgeon at UW Madison Hospital. From the moment I met my surgeon I knew that the journey I was about to take was the right one. In reality I really was out of options. All my Dr's were in agreement that if the disease wasn't going to kill me the prednisone just might. So, on Aug 22nd I went in for illeal pouch reconstruction surgery with the intent that I would go back for a reversal in Nov. I will be unable to have the take down surgery in Nov,due to the fact that I don't heal as fast as other people----I also have Lupus. The surgeon said even for some reason I was healed that he would not feel comfortable doing the surgery that soon. Before the surgery I was so looking forward to only having to wear the bag for only a few months; however now this news really didn't seem to upset me. I have my good days & bad days. My main issue seems to be with major leaking problems. Yesterday my home health care nurse changed the size of the bag & so far I have not had any problems; however my skin is so red, raw , burning & so painful. The leaking problems have been a real nightmare. I guess a question I have is---when does the bag not consume your every thought? I have been told by SO many people how good I''m going to feel, but I'm not quite there yet & need some reassurance. Tomorrow I see my surgeon for my post-op appt. I have so many questions for him.