Almost a year since my final J pouch surgery

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ByeByeUC
Veteran Member


Date Joined Feb 2011
Total Posts : 4544
   Posted 9/6/2011 2:11 PM (GMT -6)   
I thought I would post because it seems there are quite a few people and people's children going in for surgery because of their severe UC. It's almost my year anniversary of my final surgery. I can only comment on J pouch surgery since that is what I had done. For me, I knew I didn't want a permanent ileostomy so I opted for the J pouch.  My sister has had a j pouch for 20 years so I figured, what the heck, she has done awsome.
 
I had my first surgery in June 2010. The colectomy and the J pouch was made. I had the temp. loop ileo for 3 months and then in October 2010 I had my final surgery (takedown). It was a tough recovery getting thru all that but I just want to say it is SOOOO worth it now. I cannot believe what a difference in my life this surgery has made. And I fought it tooth and nail! I wish I had done it a lot sooner..it would have saved me and my family a lot of grief. It is a scary thing to face...and I can't imagine having my child have to face surgery like some folks on here. That would just kill me. But if one of my kids was suffering like I was, I know now that surgery is a life saver. It's so nice to be able to eat whatever I want again. I don't have to take anymore nasty drugs. I just pop my multi-vitamin everyday.
 
So for anyone facing surgery or contemplating it, it's not the end of the world. It's a beginning to your journey back to health. I love my J pouch! yeah
DX UC - in 2005 when I was 37
Tried every drug-even Remicade-Tried diets-nothing worked
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC!!! Very happy with my results of this surgery!

Post Edited (ByeByeUC) : 9/6/2011 2:14:38 PM (GMT-6)


worried mom 1
Regular Member


Date Joined Mar 2010
Total Posts : 172
   Posted 9/6/2011 4:43 PM (GMT -6)   
congratulations, Today is my 16 year old daughters 5 months post-op. I hope I will be writing with good news on her one year. She is doing great. I so agree with you, I fought it tooth and nails also. Hope she will do as well as you and your sister have.

Chevypower1930
Regular Member


Date Joined Sep 2009
Total Posts : 254
   Posted 9/6/2011 5:51 PM (GMT -6)   
Congrats! I am 8 months post op and feeling absolutely great! I'm back racing Motocross, playing soccer, and wakeboarding.... 100% back to my normal active life!
21 Year Old Male

Diagnosed with Moderate/Severe Ulcerative Colitis May 2008
3 Flair ups (first flair- 2 months/Second Flair- 2 months/ Third flair- One week, then surgery)

-Full Ileostomy surgery done on july 22!
-J pouch DONE--January 6th

Living a COMPLETELY normal and active life with a J pouch!

Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 9/7/2011 9:37 AM (GMT -6)   
Dillon also is doing really well......life is, again, the way it should be for a young man.
Mom to Dillon (age 20) who had three major UC flares over two years....Very sick. Colectomy Sept/09, J pouch built Jan/10 and take down Feb/10. Now out living life at University and doing great. NO MEDS

betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 9/9/2011 6:39 PM (GMT -6)   
I'm almost to the one year anniversary of my first surgery towards J-pouch. Like you I wish I'd done it sooner! hurray for feeling great!
-diagnosed with UC Dec 2006 at 22
-allergic or intolerant to all 5ASAs, sulfa and 6-mp
-emergency transverse colostomy on 9/13/10 from perforated colon
-J-pouch surgery step 1 of 2 3/21/11
-Takedown 6/13/11
I <3 my J-pouch!

run4pancakes
Veteran Member


Date Joined Oct 2008
Total Posts : 938
   Posted 9/9/2011 6:41 PM (GMT -6)   
Thank you for sharing. As someone in the process, it always helps to hear positive stories. :-)
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Step 2 10/20/2011, Step 3 TBD
http://life-takes-guts.blogspot.com/
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