can't see surgeon 'til November! and a question..

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Eva Lou
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Date Joined Sep 2006
Total Posts : 3442
   Posted 9/7/2011 7:29 AM (GMT -6)   
I have my consult appt. on 11/8- was hoping it could be a little bit sooner, but I suppose a little time will be helpful- long as I don't chicken out! Still not sure if's the "right" thing to do- once the surgeon gets all my scopes & path reports, I imagine he'll be able to shed more light on it. Just don't want to trade one set of problems for another, you know? Now my question is 1 piece or 2? I think I'd prefer a 1 piece, seems easier all around, but harder to place correctly, at least at first. And what's the benefit of a 2 piece? I mean, you change the whole deal every 3-5 days anyway, right? So wouldn't you wind up changing the whole appliance just as you'd be throwing out the bag anyway?
diagnosed 2002
Asacol
Remicade-10mgs/kg- from 4/07 thru 1/10
Humira
Imuran- 150mgs/day
homemade kefir, probiotic supplement, turmeric

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 9/7/2011 9:23 AM (GMT -6)   
Hi Eva Lou,
Everyone is different as far as appliances go, I use the 2 piece coloplast sensura and I am very happy with it and as you said its easier to place on the stoma since you can see exactly where you are placing it, and you can keep the base plate on for a few days and just change the bag. Which is what I do. The less pulling off the appliance the better on the skin. But its an individual choice. You can request samples once you have had your surgery and try a few different ones out and then figure out which one best suits you. Good Luck with it all and hope you have a speedy recovery
Doreen

Eva Lou
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Date Joined Sep 2006
Total Posts : 3442
   Posted 9/7/2011 10:03 AM (GMT -6)   
So you empty the bag for a day or so, then change the bag to a new one? Makes sense to keep the wafer part on your skin as long as possible... I'd like to try a 2 piece initially. And how do you throw the bags out, do you put them in a ziplock bag, or do they give you disposable bags? I mean, you can't just toss it in the trash! Right?!?!?!

diagnosed 2002
Asacol
Remicade-10mgs/kg- from 4/07 thru 1/10
Humira
Imuran- 150mgs/day
homemade kefir, probiotic supplement, turmeric

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/7/2011 12:05 PM (GMT -6)   
I like 2 piece cause its easy to see putting it on, I've never tried a one piece though. Also I like 2 piece cause if the bag gets icky or if the filter goes you can just change the bag.
But I rarely ever just change the bag, I just leave the whole thing. I've been getting 6 or 7 days, I could get more but don't wanna push it, lol.
Hollister stuff comes with these brown bags that keep odor in and I just put my bag in there. Or a ziploc bag works too. Its really no different than a poopy baby diaper. I just toss it in the trash then take the trash out.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Ironmum
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Date Joined Oct 2010
Total Posts : 776
   Posted 9/7/2011 12:06 PM (GMT -6)   
Hi Eva Lou

Hope all goes well with the consult.

Your nurse will likely start you with a one piece drainable after surgery as it's less hassle and less room for error. Plus you'll be sore after surgery and need to keep things simple and the one piece is actually easier to use.

There is also less of it (ie only one layer) and the 2 piece systems tend to be a little more bulky. At the end of the day though it's personal preference and after some time you'll try different systems and work out what you prefer. I'd go one piece to start with though.

I change my bag every day - usually have a bag free shower in the morning (heaven!) and I like to see what's going on underneath - so a 2 piece has little benefit to me. Yes it just goes in the trash (wrapped up in a nice fragranced bag!). I'm lucky as I'm in the UK I can get unlimited supplies - I do know in other countries people are limited to the number of bags due to insurance etc.

Funnily enough I've done the rounds with trying various systems and ended up using the one piece I came out of hospital with!
Good luck Sarah
Sarah - 39 year old mum of 2 boys, runner/triathlete from UK
June/Oct 2010 - Peritonitis/perforated diverticulitis. Sigmoid colectomy, temp ileo then reversed.
DX Colonic dysmotility.
July 2011 - Permanent end Ileostomy after begging surgeon to put it back
Follow my blog - http://bagthatruns.blogspot.com/

Christine1946
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Date Joined Aug 2008
Total Posts : 5965
   Posted 9/7/2011 4:04 PM (GMT -6)   
     Hi Eva!  I use the one piece Coloplast Sensura bags.  In the hospital they started me on the one piece Hollister.  They were ok at first, until one broke on me while I was at the Borgata in AC watching the Comedy Club act..lol shocked    I didn't even realize until I went to the ladies room immediately after the show...YIKES!  What a fiasco!  Thank God I was wearing black pedal pants and NOT white.  I was able to clean myself up but my extra bags were back at our RV (great place for them huh?)  So, I just packed the broken bag up with toilet tissue and told my hubby we have to leave FAST!  Good thing the campground was only about a fifteen minute drive.  Hollister broke on me once after that and it wasn't even filled that much.  I contacted the ostomy nurse I had in the hospital and he suggested the Coloplast and I LOVE them!  Never had any accidents and believe me, sometimes I just get too busy and my hubby has to remind me...you check your bag lately? tongue    I change the appliance every third day.   
     Good luck Eva!  I know you are apprehensive, it is only natural.  But, believe me, you will feel sooooo much better when you are healed.  God bless!

Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 9/7/2011 4:28 PM (GMT -6)   
sounds like everyone loves those sensura bags! I checked them out on edgepark, they do look pretty neat. I'm sort of excited to try different appliances, you'd think it was a shopping spree or something!
PS- I can't figure it out though- if you order a 2 piece bag, does the adhesive sticky part come with it, or do you buy it separately? I can't find the adhesive part anywhere on edgepark.
diagnosed 2002
Asacol
Remicade-10mgs/kg- from 4/07 thru 1/10
Humira
Imuran- 150mgs/day
homemade kefir, probiotic supplement, turmeric

Post Edited (Eva Lou) : 9/7/2011 4:45:23 PM (GMT-6)


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/7/2011 5:27 PM (GMT -6)   
the adhesive stick part is the wafer (this took me forever to figure out too) or sometimes its the flange, or sometimes its the face plate. the bag is separate. if i remember the sensura stuff is very confusing on edgepark
https://www.edgepark.com/shopcatalog/searchresults.cfm?page=1&KeywordSearchType=ALL&Manufacturerid=62&RowsPerPage=25&SortDirection=ASC&Orderid=0

that page has a few of the flanges on it. i tried coloplast and really wanted to like it, but the way the bag fit on and the way the wafer was i just was too nervous about, i wasn't confident it was going to hold up for me.

they started me on a 2 piece hollister, and i stuck with pretty much the same thing except i went to velcro instead of clip, and now hollister has "Improved" their bags, so when i run out of those, i am going to the convatec ones, i like the moldable part, but i dont like the bag as good.
all the manufacturers will send you LOTS of samples so you can try all of them
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 9/7/2011 6:42 PM (GMT -6)   
I also use two piece bags. I like the option of being able to look at my stoma if something feels weird. I also put my deodorizing drops in through the top part as well; it's just easier for me. I also like to "burp" my pouch if it gets filled with air and if a one-piece pouch got filled with air, you can't do that. Also, I need a convex wafer, and it's hard to find that in a one-piece.

It's totally personal preference though! Up to you.
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)
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