Wanted to check on you and see how your 1st surgery went. My son is 14 yrs old and just had his 1st of three surgeries three weeks ago. He also has to have three stage surgery due to how diseased his colon was. He has suffered from very agressive UC for the past year and has been on every possible medication with including Remicade infusions, with no results.
But he is doing GREAT!! He went back to High school three weeks after his surgery, has gone fishing, out to eat and to the movies with his friends. He has his life back! and is not afraid to go out just because he won't be near the bathroom. Noone, other than his close friends, even knows he has a bag, and you can't even tell he has one when he is dressed.
The first words out of his mouth after surgery were " I can't believe how much better I already feel". And at his first followup with the surgeon one week after surgery, he told the surgeon he feels better than he has in a year. We had no choice but for him to have surgery, but it was the best thing we could have ever done.
I hope that your surgery went well and that you are recuperating and feeling better already. If you ever want to chat, I would be more than happy to talk. "MustLoveDogs" is also on this website and her daughter and my son are going through the same thing at about the same time. We talk all the time and the support from someone who is going through the same thing, is priceless. "Rachel's Mom" and her daughter, "ElddireMsihT" just had her third surgery and I think she is your age. They have provided us with some great feedback and support. This forum has been a godsend to me during the last year.
I wish you the best and I am hear if you need an ear. I find myself coming to this site all the time with questions, and the members on here provide great support and feedback.
Wishing you well!
14 yr old male, Diagnosed February 2011. Phase one of 3 stage surgery on 8/30/11, Total abdominal laprascopic colectomy and ileostomy. UC FREE! No more nasty meds!!!
Previous meds included: Remicade, 6MP, ,Poly-Iron, Canasa, Asacol 800HD, Colazal, Levsin, Pepcid,Sulfasalazine,Prednisone