Colonic inertia sub total colectomy

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Regular Member

Date Joined Feb 2011
Total Posts : 20
   Posted 9/9/2011 9:39 AM (GMT -6)   
I have had anismus and outlet problems and diagnosed with colonic inertia. I do go but ALWAYS have to use suppostories and since starting on laxatives seem to be dependednt on those now.
I am scared as people on ME/ CFS (chronic fatigue syndrome..which I have) are saying DO  NOT HAVE THIS SURGERY!!! and someone who says that he had surgey similar for cancer and is going to the toilet every hour and often doesn.t make it! not what I want at all as thsi would be worse than life now.
Please anyone who has experience of this good or bad , please contact me. I feel really preturbed by this. I am hoping for life improvement away from teh bathroom not more problems...please any replies I'd be grateful

Bay Area Guy
Regular Member

Date Joined Jul 2010
Total Posts : 301
   Posted 9/10/2011 1:00 PM (GMT -6)   
I haven't had this experience, but I wanted to say something just to get your post back up to the top of the list in case someone else has experienced your situation.

Veteran Member

Date Joined Dec 2010
Total Posts : 3332
   Posted 9/11/2011 3:28 PM (GMT -6)   
I haven't had this experience either, but it sounds like you've only been in touch w/one person who had the surgery and had a bad outcome .... you need to get a better sense of the risks in your particular case. Have you talked to a CR surgeon or a gi doctor about that?

People who don't have gut issues are not going to understand how this sort of surgery can be a positive thing. I had the opposite problem and a different surgery, but my life is so, so much better after the surgery.

You need some good information.... it's all so scary that it's easy to get spooked by one bad experience. Hang in.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

2b ColonFree
Veteran Member

Date Joined Nov 2008
Total Posts : 2603
   Posted 9/11/2011 4:57 PM (GMT -6)   
you can learn A LOT about the surgery for colonic inertia and it's outcome if you google "total colectomy part 3" (1 and 2 are not titled as "part 1/2" so it's hard to find them. but the threads of part 3-30+ are a wealth of information!

i also had the surgery for colonic inertia. i also have an outlet disorder, but i also have a slow small intestine. even tho the surgery didn't work for me perfectly, and i eventually needed a stoma, i don't regret having it and will do it all over again if i had to. first of all, just having this nonfunctional colon out of me feels so much better. i'm not a success story, but if you read those threads, you'll find many women who had wonderful success with it.

as for incontinence, those of us with CI and also a pelvic floor dysfunction rarely end up with incontinence. just the opposite, most of us still have trouble pushing out the stools, even after the surgery.

as for me, i now have an ileostomy and so so happy with it. no more bloating, no more pain, i can eat and still feel good!! actually, i now can eat anything i want and still feel good, no more spending 6 hours every morning in the b/r (and still poor results) - i now can go out of the house in the mornings! and don't have to wake up at 3 am to be able to make it on time for work! no more gasy, no more whirlpools inside of me, don't look 5 mons pregnant any more. i can honestly say i feel i gained my life back after 17 years of struggle.

but from reading those threads i mentioned, you'll learn that most of those who have sugery for CI don't end up with a bag. good luck. feel free to ask any questions.
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy
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