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Veteran Member

Date Joined Oct 2008
Total Posts : 938
   Posted 9/9/2011 12:20 PM (GMT -6)   
Some of you will have seen this already from my blog, but not everyone read over there so:

Had follow up on Wednesday with my surgeon. After labs and manometery (what fun that was!) I'm cleared to move forward with the Step 2 surgery to construct my j-pouch. I will do pre-op on 10/19 and surgery on 10/20 at Cleveland Clinic main campus. I can't believe I'm actually looking forward to going back into the hospital, but I really am! It feels like I've been waiting a long time and I'm happy to see the day is finally here (or at least scheduled!).

Veteran Member

Date Joined Dec 2010
Total Posts : 3332
   Posted 9/9/2011 12:24 PM (GMT -6)   
Congrats! Glad you're excited and that it's not too far away.
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

Another UC wife
Veteran Member

Date Joined Jun 2007
Total Posts : 2111
   Posted 9/9/2011 12:33 PM (GMT -6)   
Great and good luck with everything going perfectly for you.  Of course let us know how you're doing when you're able to.

Veteran Member

Date Joined Oct 2008
Total Posts : 938
   Posted 9/9/2011 12:36 PM (GMT -6)   
I could have gone sooner if I wanted to, but my half marathon is on 10/16 and I'm not missing it. I've been training too hard. :-)
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Step 2 10/20/2011, Step 3 TBD

Veteran Member

Date Joined Feb 2011
Total Posts : 4549
   Posted 9/9/2011 12:45 PM (GMT -6) wishes! Good luck with your marathon too! :)
DX UC - in 2005 when I was 37
Tried every drug-even Remicade-Tried diets-nothing worked
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC!!! Very happy with my results of this surgery!

Veteran Member

Date Joined Oct 2010
Total Posts : 776
   Posted 9/9/2011 3:19 PM (GMT -6)   
great news!! you've done so well to drop the weight and you'll fly around that half marathon! good luck have everything crossed for you x
Sarah - 39 year old mum of 2 boys, runner/triathlete from UK
June/Oct 2010 - Peritonitis/perforated diverticulitis. Sigmoid colectomy, temp ileo then reversed.
DX Colonic dysmotility.
July 2011 - Permanent end Ileostomy after begging surgeon to put it back
Follow my blog -

Veteran Member

Date Joined Jun 2011
Total Posts : 1912
   Posted 9/10/2011 10:28 AM (GMT -6)   

I think I know how you feel. I'll be having three ops, and the first was in April so I'm sentering my sixth month now with stoma and bag. Thankfully I and it have settled into our routine together and I don't think about it much during the day. I could have teh 2nd op in October, but I the timeing doesn't jove with my job, so it will probably have to wait until December. I am seriously not looking forward to more hospital, more surgery etc., but I know I want my body back.
My surgeon never said anything about tests before the second op. He just said I should mak an appointment with him for the surgery. Are there standard tests?
All the best,
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