Surgery scheduled...sort of

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Alibee
Regular Member


Date Joined Oct 2010
Total Posts : 286
   Posted 9/10/2011 10:52 AM (GMT -6)   
Hi everyone, here's my update on my appointment for a second opinion: (thanks kyle for checking in on the other thread!)

Long story short: I have colonic inertia and went through all of the testing at UNC, met with a surgeon who said he would do a total colectomy, but I needed another surgeon's opinion for my family to have peace of mind. So I got a referral to see another surgeon at Duke.

First of all I liked Duke and Dr. Thacker MUCH more than I thought I would. I was very prepared for the average surgeon/specialist bedside manner...but she was very easy to talk to, extremely knowledgeable, and to my surprise she was the ONLY one I had to talk to...I didn't have to explain why I was there to a nurse/PA/anyone else. She had read through all of my records and looked at all of my tests before she even came in the room.

Second, the appointment went alright. Not perfect, but not bad. She wants me to have a defecography. I was SO hoping to slide by without having to get one, but with my "history" of the slight paridoxical contraction during my manometry and 2+ months of biofeedback, she wants me to have a defecography. I explained how worried I was because I didn't want to somehow fail the defo and then be told "no surgery for you"...but the way she explained it was that there wasn't going to be a specific thing she was looking for. She wants to get an idea of my anorectal angles and get a clear picture of my rectum, she said this way she can have an exact idea of what is happening down there before any surgery is done, because once you have surgery everything changes and you can't go back in time and do the test.

She said that she wouldn't cancel a surgery based on a funky picture from a defecography - but it is still something she wants to be able to see. She said the chances of her canceling on a surgery would be extremely slim, and that if I didn't have the manometry test already, that based on her rectal exam she wouldn't have even ordered a defecography. She even said I could come to duke and have the defecography the DAY BEFORE, and then have the surgery the next day. Crazy!

I have the test on September 19th, I am very nervous but she said if I can "go" when stool DOES get down there, such as in the rare times a laxative works, that is a good sign. I just know it is very different trying to go in a clinical setting. Even at home I have to have a magazine or the water running or something any time I try to go, and I never go in front of anyone!!!

Then on November 4th I have appointments with anesthesiology, pre-op, and another appointment with Dr. Thacker,
And then on November 8th, I'm scheduled for surgery! (pending an acceptable or not too crazy defecography)

I am half relieved and half a nervous wreck about this defecography, it's not like a test I can study for or anything...

My parents were with me for the end of the appointment to have all of their questions answered, and for the scheduling. They are pretty much completely on board with everything. So now the wait begins again, once I do the test and know that the surgery is definitely still on, I'll feel much better.

I am sure I will be asking questions about defecographies soon...

Thanks so much for your support everyone, I would be insane without all of you. You're all so wonderful.

Ali

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 9/11/2011 3:59 AM (GMT -6)   
YAY Ali, finally progress! sounds like dr Thacker knows her buisiness and i'm glad you like her and feel comfortable with her. i thought you already had defecography..? i def think you must have this test before surgery. she must have a full picture of your pelvic's anatomy and functional abilities. it's an aweful test, i know, but it is a must before going to this surgery. i would be very  skeptical about her if she hadn't ordered the test. tho i don't understand how one can have defecography A DAY before surgery???? that surely sounds crazy, i mean what about all the barium they insert in your rectum and the huge barium shake you have to drink for this test???? how can that be done day before surgery??? beats me.....
 
but anyway you're not having it day before surgery and i'm glad. i know how you feel about this test. first time i had it i wanted to bury my self from embarrasment blush   but you'll be wearing a big robe and it is so short, it will be over before you know it!
 
Ali, i'm so excited for you. and i'm glad your parents are accepting it finally and supporting you! i know how important it was for you. and we're here for you too with any question or concern and will try to help best we can. keep us posted on the defeco's results. hang in there honey! i know how eager and anxious you feel right now, believe me i know. but not long is left for you :-)  and you'll feel so much better w/o this nonfunctional colon. you're finally on your way to a healthier life yeah   good luck with the test!!

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 9/11/2011 10:04 AM (GMT -6)   
Ali!
What good news. I know you wanted to just have her schedule the surgery, but I think that her doing the defocography tells that she's a good doctor. She's covering all her bases and making sure she knows the best way to do the surgery. Most drs like to do their own tests just to see for themselves instead of relying on someone else's opinion.
 
Don't be too nervous. She already told you it's highly unlikely she'd cancel the surgery--she already scheduled it, for pete's sake! I think this sounds like really good news. I'm so glad for you. Don't be nervous for the defo. Unless you suddenly turn into a different person with a normal digestive system, you'll be fine.
 
Keep us posted!
 
 

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 9/11/2011 3:22 PM (GMT -6)   
Glad you had the appointment, finally, and that you liked the surgeon, your parents are on board, and you have a plan..... a lot of good things, don't lose them in the mix.... it's so normal to be nervous. On to the next step....
48 years old, female.
2004 dx indeterminate colitis. Back and forth between Crohn's and UC dx. Many drugs, minimal success.
2010-11 Crazy skin and eye complications, high fevers, bad flaring. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery
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