Takedown here I come!!!!

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New Member

Date Joined May 2011
Total Posts : 18
   Posted 9/12/2011 3:57 PM (GMT -6)   
I havent posted much on this site but i do follow alot of you and have read many of your stories which lead me to the ultimate decision to have surgery...... I had my gastrograffin (not sure of the spelling) enema and it looks like I have healed well from my j-pouch and will have my takedown surgery on Monday the 19th!!! I am so excited and looking forward to carrying on with a normal life and I FEEL AMAZING!!!
Thank you all so much for putting your stories out here and being a great support system for so many of us UC sufferers and pouchees!!!!!!
any feedback on life after takedown would be great!!!

Veteran Member

Date Joined Dec 2010
Total Posts : 3332
   Posted 9/12/2011 5:23 PM (GMT -6)   
Congrats! I don't have a j pouch, so others can share stories, but it's great that you're doing so well. Good luck w/the next step.
49 years old, female. Sick for way too long with Crohn's (or possibly UC) Proctocolectomy and permanent ileostomy in Feb 2011. Perineal wound taking its time healing, but otherwise feel better than I have in years. I only take vitamins now, no drugs at all!

worried mom 1
Regular Member

Date Joined Mar 2010
Total Posts : 172
   Posted 9/12/2011 7:41 PM (GMT -6)   


 Good luck to you on Monday.  My 16 year old daughter is just 5 months post-op from her takedown surgery.  All I can say is she is doing great.  Back to school and living her life as a normal teenager should.  Some days she can't even remember how many times she had gone to the bathroom.  She can hold it with no urgency.  Feeling great.

Veteran Member

Date Joined May 2009
Total Posts : 827
   Posted 9/12/2011 7:48 PM (GMT -6)   
You will do great! The surgery itself is SO much less than what you have already been through. yeah

It is helpful to have flushable disposable wipes with you....they are SO much easier on the "behind" than toilet paper. The hospital should give you a barrier cream and make sure you use it after EVERY trip to the loo. At the beginning expect to be making frequent trips to the bathroom but as soon as you start to eat again it will start to slow down and become less acidy.

As with the other surgeries make sure that you GET UP AND WALK until you are sick of it....it is the best thing that you can do.

I cannot tell you how well Dillon is doing......you will get there soon! turn
Mom to Dillon (age 20) who had three major UC flares over two years....Very sick. Colectomy Sept/09, J pouch built Jan/10 and take down Feb/10. Now out living life at University and doing great. NO MEDS

Another UC wife
Veteran Member

Date Joined Jun 2007
Total Posts : 2111
   Posted 9/12/2011 9:02 PM (GMT -6)   
Good Luck on the 19th...I'm sure you're gonna do just fine! YAY
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

windy city
Veteran Member

Date Joined Dec 2010
Total Posts : 607
   Posted 9/13/2011 9:54 AM (GMT -6)   
You sound sooooo thrilled and I'm sooo thrilled for you!!!! Best of luck and you will do amazingly well, walk alot, listen to your body regarding food, don't expect the world in one day :-) and take a deep breath and count your blessing because you've been through alot and you've survived!!!!!! :-) :-)

Veteran Member

Date Joined Feb 2011
Total Posts : 4549
   Posted 9/13/2011 10:21 AM (GMT -6)   
My takedown was very uneventful thank goodness! 30 minutes in the OR, minimal pain and my new plumbing woke up pretty quickly. It was actually nice to go to the bathroom again after 3 months with the bag! I did have A LOT of gas pains which is totally normal. They lasted a few days after I got home from the hosptial and then they subsided. Walk as much as you can after the surgery...it will help with the gas pains. If you don't have some, buy some Calmoseptine ointment. Walgreens carries it and also Amazon.com does too. It will help with the butt burn/irritation you may get at first. Go slow with foods the first few weeks also. After three weeks I was eating cheesburgers and fries with no problems! Heaven!

Best wishes to you!!!
DX UC - in 2005 when I was 37
Tried every drug-even Remicade-Tried diets-nothing worked
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC!!! Very happy with my results of this surgery!
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