Good news...finally

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MotherofTeenwithNoUC
Regular Member


Date Joined Mar 2011
Total Posts : 227
   Posted 9/12/2011 5:04 PM (GMT -6)   
We havent been on here for awhile...hospital visits have been keeping us very busy these days! eyes
 
Here's the short and sweet version...
Brandon had stage one of three surgeries on August 30th.   He was released after only four days in the hospital...."unheard of" was the term the surgeon used...however, he was doing SO well, that they sent him home.   Brandon took total ownership of his new anatomy.   I am so proud of him and he was doing great...home recuperating, getting the school assignments done so I could deliver them back to the school, and trying to stay caught up.   Last Thursday, he overdid it with the breathing exercises and wound up in the PICU for 3 days with Pneumomediastinum, only five days after getting home.   
 
He was released yesterday and is back home.   He told me yesterday that he hasn't felt this good in a year.   No pain, no blood, no cramps.   Occasionally, if he doesnt watch what he eats, he tends to fill the bag with gas, just like a little balloon!  But he is learning what to stay away from.   (He actually begged for McDonalds in the ICU and they let me bring it to him.  The first REAL smile I have seen in 6 months!)
 
We went today for the one week followup visit with the Stoma Nurse and she gave us the thumbs up.   He is doing great and doing exactly what he should be doing.  
 
Now he is just trying to stay up to date with school work.   His plan is to try and go back to school next Monday.   yeah That will have him out only three weeks.   Next surgery tentatively planned for December.  
 
A special thank you to MustLoveDogs for being such a great friend!  You have been a blessing during these trying and exhausting times.   Brandon and I are so lucky to have met you and Paige and I can't wait for the day that your daughter tells you how wonderful she feels!!!  That day is coming, I promise!  Keep the faith sista!!!   turn
 
MotherofTeenwithUC
14 yr old male, Diagnosed February 2011. Phase one of 3 stage surgery on 8/30/11, Total abdominal laprascopic colectomy and ostomy. UC FREE! No meds.
Previous meds included: Remicade, 6MP, ,Poly-Iron, Canasa, Asacol 800HD, Colazal, Levsin, Pepcid,Sulfasalazine,Prednisone

Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 9/12/2011 7:17 PM (GMT -6)   
This is great news....I am sorry about the pneumomediastinum but it is over and your whole family should enjoy EVERY day of Brandon's new found health! ...ENJOY
Mom to Dillon (age 20) who had three major UC flares over two years....Very sick. Colectomy Sept/09, J pouch built Jan/10 and take down Feb/10. Now out living life at University and doing great. NO MEDS

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 9/13/2011 11:06 AM (GMT -6)   
Glad to hear that he's healthy now. Wonderful news!
49 years old, female. Sick for way too long with Crohn's (or possibly UC) Proctocolectomy and permanent ileostomy in Feb 2011. Perineal wound taking its time healing, but otherwise feel better than I have in years. I only take vitamins now, no drugs at all!

Rachel's Mom
Regular Member


Date Joined Feb 2011
Total Posts : 92
   Posted 9/14/2011 6:51 AM (GMT -6)   
So very glad to hear that Brandon is doing so well! I bet you're smiling even in your sleep, Pam! I know I am! turn  Here's to smooth sailing the rest of the way. It sounds like your son has the right attitude and that will get him far!

MotherofTeenwithNoUC
Regular Member


Date Joined Mar 2011
Total Posts : 227
   Posted 9/14/2011 3:20 PM (GMT -6)   
Rachel's mom...how is Rachel doing and how is she enjoying being back at school?  Brandon is set to try and go back to school on Monday.   He is a little apprehensive to say the least.   I think it will be the best thing for him to do. 
MotherofTeenwithUC
14 yr old male, Diagnosed February 2011. Phase one of 3 stage surgery on 8/30/11, Total abdominal laprascopic colectomy and ostomy. UC FREE! No meds.
Previous meds included: Remicade, 6MP, ,Poly-Iron, Canasa, Asacol 800HD, Colazal, Levsin, Pepcid,Sulfasalazine,Prednisone

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 9/14/2011 4:29 PM (GMT -6)   
I am so happy that Brandon is doing well. Going back to school will be very good for him. When I went back to work after surgery if felt so great to have a sense of normalcy in my life again. Plus it showed me that life would go on (and very well!) post-surgery.
-39 years old
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 9/15/2011 8:45 PM (GMT -6)   
yay! i'm happy to hear he's doing so well!
-diagnosed with UC Dec 2006 at 22
-allergic or intolerant to all 5ASAs, sulfa and 6-mp
-emergency transverse colostomy on 9/13/10 from perforated colon
-J-pouch surgery step 1 of 2 3/21/11
-Takedown 6/13/11
I <3 my J-pouch!
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