We havent been on here for awhile...hospital visits have been keeping us very busy these days!
Here's the short and sweet version...
Brandon had stage one of three surgeries on August 30th. He was released after only four days in the hospital...."unheard of" was the term the surgeon used...however, he was doing SO well, that they sent him home. Brandon took total ownership of his new anatomy. I am so proud of him and he was doing great...home recuperating, getting the school assignments done so I could deliver them back to the school, and trying to stay caught up. Last Thursday, he overdid it with the breathing exercises and wound up in the PICU for 3 days with Pneumomediastinum, only five days after getting home.
He was released yesterday and is back home. He told me yesterday that he hasn't felt this good in a year. No pain, no blood, no cramps. Occasionally, if he doesnt watch what he eats, he tends to fill the bag with gas, just like a little balloon! But he is learning what to stay away from. (He actually begged for McDonalds in the ICU and they let me bring it to him. The first REAL smile I have seen in 6 months!)
We went today for the one week followup visit with the Stoma Nurse and she gave us the thumbs up. He is doing great and doing exactly what he should be doing.
Now he is just trying to stay up to date with school work. His plan is to try and go back to school next Monday. That will have him out only three weeks. Next surgery tentatively planned for December.
A special thank you to MustLoveDogs for being such a great friend! You have been a blessing during these trying and exhausting times. Brandon and I are so lucky to have met you and Paige and I can't wait for the day that your daughter tells you how wonderful she feels!!! That day is coming, I promise! Keep the faith sista!!!
14 yr old male, Diagnosed February 2011. Phase one of 3 stage surgery on 8/30/11, Total abdominal laprascopic colectomy and ostomy. UC FREE! No meds.
Previous meds included: Remicade, 6MP, ,Poly-Iron, Canasa, Asacol 800HD, Colazal, Levsin, Pepcid,Sulfasalazine,Prednisone