Surgery on Monday

New Topic Post Reply Printable Version
43 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 9/21/2011 5:28 PM (GMT -6)   
A little background: I had surgery 7 months ago, and my butt wound has not healed. I started seeing a plastic surgeon a month ago, who started me on silvadene creme. After 2 weeks the wound had closed to half its length.

So, when I went in today I was expecting to hear how much it had closed or hadn't, but what I wasn't expecting was that he said I needed to have surgery soon. I was supposed to go out of town on Fri to see my family and he said to cancel the trip.

I asked to page my colorectal surgeon, who came after a bit. We walked over to her examining room, and all the way there she was saying he was exaggerating, that it's not an emergency after 7 months etc .... and then she took a look at it, and said he was right.

I need a CT for more info, but it looks like my small bowel is poking into the wound a little. She said the NEVER see this, except in really, really elderly people with bad tissue..... looks like a perineal hernia of the small bowel, and that's why the wound hasn't been healing -- but no one could see it before. It's not an emergency like I need to have surgery today, but soon, and they could schedule for Mon.


She thinks she's going to need to do something like move the small bowel out and then put some mesh in to hold it. I seem to remember something on here about problems w/mesh and adhesions and such..... I can search it but if anyone wants to comment, that'd be helpful.

Kind of in shock over here..... but in a weird way, relieved that they might know what the problem is now..... not feeling yet how much of a drag this is..... I was doing great, and now it'll be 5-7 days in the hospital and at least 3 weeks of no sitting...... sort of weird to think that I thought the wound was healing because I could feel the end of it, and what i was really feeling was probably my small intestine..... guess I've felt that before on my stoma.


She thinks it had to do w/the abscess I had after surgery..... she described in more detail, but i can't remember it now....

Sigh..... sigh..... sigh.....
49 years old, female. Sick for way too long with Crohn's (or possibly UC) Proctocolectomy and permanent ileostomy in Feb 2011. Perineal wound taking its time healing, but otherwise feel better than I have in years. I only take vitamins now, no drugs at all!

Rachel's Mom
Regular Member


Date Joined Feb 2011
Total Posts : 92
   Posted 9/21/2011 5:36 PM (GMT -6)   
Awwww, so sorry to hear this, Blueglass. I'm sure it's the last thing you expected. At least you now have answers as to why recovery has been so slow for your wound and hopefully this will take care of things and you can put it behind you. Please let us know how you're doing. Will be thinking of you. ~Lynn

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 9/22/2011 5:27 AM (GMT -6)   
hey blueglass, i wrote to you on Brian's thread. i was so sorry to hear you need more surgery, but hopefully this will finally solve the wound issue once and for all. sorry i can't help with the mesh subject, don't know anything about it. i wish you best of luck!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 9/22/2011 5:39 AM (GMT -6)   
I feel your pain bluegrass as I had lots of adhesion problems and have required surgery for that as well and will need some more fixed in the near future. Seems just when you think its all fixed that will be the end of all problems but unfortunately these things happen and we just have to grin and bare it I guess. I'm sure you will feel better soon and this will alll become a distant memory. As if crohns/colitis doesn't give us enough grief hey lol. Keep your chin up and keep smiling
Take care
Doreen

MotherofTeenwithNoUC
Regular Member


Date Joined Mar 2011
Total Posts : 227
   Posted 9/22/2011 7:40 AM (GMT -6)   
So sorry to hear that you are in need of surgery again, but at least there is a light at the end of the tunnel and they found why you werent healing properly.   My mother had a mesh put in when she had surgery for a perennial hernia and she has had no problems with and healed quickly from the surgery.   The best of luck to you!!  Hope that you are feeling better soon!
 
MotherofTeenwithUC
14 yr old male, Diagnosed February 2011. Phase one of 3 stage surgery on 8/30/11, Total abdominal laprascopic colectomy and ostomy. UC FREE! No meds.
Previous meds included: Remicade, 6MP, ,Poly-Iron, Canasa, Asacol 800HD, Colazal, Levsin, Pepcid,Sulfasalazine,Prednisone

Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 9/22/2011 10:05 AM (GMT -6)   
I am so sorry to hear about this! Figures, huh, of course you're one of the *lucky* rare cases! I hope the upcomign surgery fixes it for good, & that the wound heals ASAP. I just feel so badly!
diagnosed 2002
Asacol
Remicade-10mgs/kg- from 4/07 thru 1/10
Humira- 1/10- present
Imuran- 150mgs/day
homemade kefir, turmeric

Ironmum
Veteran Member


Date Joined Oct 2010
Total Posts : 776
   Posted 9/22/2011 11:03 AM (GMT -6)   
oh goodness!! you poor thing. Am so sorry to hear your news. Can't help at all on the mesh front apart from my surgeon wouldn't use it in my stoma in case of infection but know surgeons have different views on it. Really really gutted for you :-( lets hope this surgery goes smoothly and you finally get back on your feet. Your positive attitude is amazing! keep strong. Sarah x
Sarah - 39 year old mum of 2 boys, runner/triathlete from UK
June/Oct 2010 - Peritonitis/perforated diverticulitis. Sigmoid colectomy, temp ileo then reversed.
DX Colonic dysmotility.
July 2011 - Permanent end Ileostomy after begging surgeon to put it back
Follow my blog - http://bagthatruns.blogspot.com/

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 9/22/2011 2:28 PM (GMT -6)   
Thanks everyone, really appreciate the thoughts from those who know (if not this specifically, something like it ....)

I got a CT and bloodwork today -- first IV in six months I think, that's something. Wow the contrast is weird w/an ostomy bag..... first it came out green and white swirled, and then it was kind of an institutional pale yellow paint color .... I think I want to call that color "barium ostomy yellow" now..... (boy for short, not that that fits).

I didn't get to sleep til 3 am last night absorbing things.... so today I'm kind of subdued. I have a lot of practical things to do to get ready, which is helpful as a focus.

Tomorrow I see both the surgeons together, so I'll find out what the tests today told them. Fortunately, my partner can get off work early to go with me.

Last night I was kind of freaked out that my intestine was going to fall out of the wound.... kept reminding myself that my intestine is way, way bigger than the opening.... so weird when the night before I was just thinking of how nice it was to be in a groove w/my work projects, eating, sleeping, etc..... oh well.

There's a Yiddish saying that comes to mind -- Man Tracht un Gut Lacht.... it means man plans, God laughs.....
49 years old, female. Sick for way too long with Crohn's (or possibly UC) Proctocolectomy and permanent ileostomy in Feb 2011. Perineal wound taking its time healing, but otherwise feel better than I have in years. I only take vitamins now, no drugs at all!

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5957
   Posted 9/22/2011 3:03 PM (GMT -6)   
     So sorry you have to go through another surgery.  I'll pray that everything goes well.
     In the matter of mesh.....I have two neighbors who had hernias and mesh was used to hold things together.  I have no idea how they do this, but, one neighbor is fine and the other suffered from infection, but she is doing very well now.

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 9/23/2011 12:51 AM (GMT -6)   
ha ha i sure know that saying :) i don't know Yiddish, but know that saying in Hebrew.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 9/23/2011 4:19 AM (GMT -6)   
I'm sorry to hear you've got to have surgery, because that's never fun, but at least now they're going to solve this problem. Don't worry about your intestine falling out...think how long it's been like this and it hasn't yet!!

Don't get too worried about the mesh. I have some at my stoma site to prevent a hernia. I don't get caught up in worrying that complications will occur. Things will happen if they're going to happen, whether you're worrying or not. And another quote: "Worrying about tomorrow empties today of its strength." No point in worrying if you don't even know if you need to worry!

Good luck and just think: in a few weeks this will finally be over and you'll be on with life!! Keep us posted!! Hugs!
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 9/23/2011 6:25 AM (GMT -6)   
Stephanie you're right .... thanks. Since I got some sleep, I'm doing much better w/that.... that worrying was a middle of the night first day I found out kind of thing....

Hodaya, I don't know yiddish either, but that quote rhymes in Yiddish, and has those harsh "cht" sounds, and it just sounds even better than in English. How do you say it in Hebrew? Does it rhyme?
49 years old, female. Sick for way too long with Crohn's (or possibly UC) Proctocolectomy and permanent ileostomy in Feb 2011. Perineal wound taking its time healing, but otherwise feel better than I have in years. I only take vitamins now, no drugs at all!

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 9/23/2011 7:22 AM (GMT -6)   
lol :D can you read Hebrew? it doesn't rhyme, but it's a nice saying anyways. if you read Hebrew:

"האדם מתכנן תוכניות והקדוש ברוך הוא צוחק"

if not: "haadam metachnen tochniot vehakadosh baruch hu tzochek" :):) as clear as it can be pronouncing wise lol....
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 9/23/2011 7:59 AM (GMT -6)   
Thanks! I could read the Hebrew if the vowels were there.... otherwise too many words I don't know (I got haadam and baruch and hu.... the easy ones I remember from Hebrew school way back when)
49 years old, female. Sick for way too long with Crohn's (or possibly UC) Proctocolectomy and permanent ileostomy in Feb 2011. Perineal wound taking its time healing, but otherwise feel better than I have in years. I only take vitamins now, no drugs at all!

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 9/23/2011 9:23 AM (GMT -6)   
Sorry you have to endure another surgery... especially when you are feeling so well otherwise, and as you mentioned, just want to get back into the normal groove of your life. At least you know what it causing all this. I remember I was so nervous when I went back under for my third surgery for my incision when it wasn't healing. My surgeon couldn't tell me how long I would exactly be under because he wasn't sure what he would find. I hated that uncertainty and in some was it was the scariest of the three operations related to my ileostomy because I didn't know what was causing the woes (the other two surgeries being the original ileo and then another operation to re-close my incision when it opened deeply two weeks after the initial surgery). I was so relieved when I woke up and heard that it was all likely due to my body having a poor reaction to the long-term dissolvable sutures used in my ab muscle layer. There was a cause and my surgeon knew exactly what to do to fix it and did just that. I never had any issues again and everything healed up beautifully. Hopefully that is how things will turn out for you now that your surgeon knows what is causing the trouble. My surgeon too said that he had never seen my issue before in all his years of doing surgery. There are so many crazy things that can happen after ileostomy surgery, but the good thing is that most all of them are resolvable when you have a great surgeon helping you, and it sounds like you have an amazingly skilled surgeon. It always helped me relax a bit knowing that I had surgeon I wholeheartedly trusted on this whole surgery journey. When something cropped up I knew that he was there to help me out... and will be in the future if I were to have any other issues.

So hang in there. I know lots of people who have had mesh inserted for various things (my dad and a couple of friends have had mesh used for regular hernias and my mom needed mesh for a complication after a hysterectomy surgery). All had no issues. I was at an increased risk of an abdominal incisional hernia due to the complications with my healing there, and my surgeon said that if I ever got one, he would use mesh to fix it.

I will be thinking of you on Monday!

-Heidi
-39 years old
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

Jackie_0mg
Regular Member


Date Joined Sep 2011
Total Posts : 427
   Posted 9/23/2011 10:58 AM (GMT -6)   
i hope things get better: now whats wrong w/ your butt i think you have comented on some things of mine and as you know im geting sugery soon ..... not trying to turn your concern to me but could that some how happen when i get the sugery .
i wish i had information to help you ..... your in my prayers blueglass :)

windy city
Veteran Member


Date Joined Dec 2010
Total Posts : 607
   Posted 9/23/2011 11:19 AM (GMT -6)   
So sorry that your enduring all of this, I do wish you nothing but positive thoughts and a positive resolution. You've endured so much, hope that this will work and you can continue your outlook on wellness.

LOL-I'm German and my mother used to say that exact saying, the spelling is just a tiny off, but the same :-)

((((((Christine))))))))))

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 9/23/2011 1:18 PM (GMT -6)   
Very quick little update -- I'll write more later as I have to run, but I just found out they screwed up my CT -- didn't go low enough... but they did go low enough so she could see that my small intestines are in the right place, it's not a perineal hernia. That's good. I did the rest of the CT free of charge (but still more radiation) so I'll have more info soon.

They aren't sure what it is, but they think it's a fluid filled sac of perineum This is good news, as I won't need abdominal surgery, and only one night in the hospital -- just closing up the wound after my cr surgeon messes around.

But 4-6 weeks of no sitting or bending, have to figure this out.

Thanks for everyone's comments, more later..... Jackie, don't worry about this.... really, it won't happen to you, didn't even happen to me.
49 years old, female. Sick for way too long with Crohn's (or possibly UC) Proctocolectomy and permanent ileostomy in Feb 2011. Perineal wound taking its time healing, but otherwise feel better than I have in years. I only take vitamins now, no drugs at all!

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 9/23/2011 4:25 PM (GMT -6)   
Christine, that's funny.... Yiddish is pretty close to German, so I'm not surprised.

Heidi thanks for your words. I was thinking even before you wrote about your story and all your surgeries, and how it worked out so well in the end. Your health is a very good image to have in my mind.... so glad that you've healed so well.

Jackie, you are having a j pouch, right? You won't have to deal w/a butt wound at all -- it's a different surgery. Thanks for your support -- I know how much you are going through now, and I appreciate it.

I am so tired.... lot of preparation on short notice....
49 years old, female. Sick for way too long with Crohn's (or possibly UC) Proctocolectomy and permanent ileostomy in Feb 2011. Perineal wound taking its time healing, but otherwise feel better than I have in years. I only take vitamins now, no drugs at all!

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 9/24/2011 5:58 AM (GMT -6)   
Blueglass just reading this thread..........so very sorry you need more surgery but yes it is good to finally get a handle on this and the proper healing. Definite challenge on the no sitting and bending recuperation end of things.

Keep us informed how you're doing if and when you can....you'll be standing at a counter doing lots of things you usually sit for. I say this as my back went out really bad once and the only way I got many things done was while standing at the kitchen counter...tiring though.

{{{HUGS}}}
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 9/24/2011 1:23 PM (GMT -6)   
waiting for your update blueglass! sorry it was hard for you to read :) God bless!!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 9/24/2011 3:14 PM (GMT -6)   
UC wife I know what you mean about exhausting. Last night I was practicing trying to get in and out of bed, the couch, a reclining chair w/out bending. My partner was critiquing my technique and making suggestions, and then I'd repeat. Basically everything is about using arm strength instead of torso strength, and I feel like I went to the gym for hours.... With standing on my legs a lot and using my arms so much, I might just come out of this buff!

I bought one of those grabber things and it's really helpful -- I could even open the bottom drawer of the fridge and get vegetables out w/out bending. I set up a card table to put some clean clothes and ostomy supplies on where I won't have to bend to get them. My partner's 16 yr old daughter started joking about the "no bending Olympics" and we started making up events (bowling with kids' pins and the grabber, etc....)

My surgeon called yesterday and the CT was as expected -- there is fluid in there, not sure why. Heidi, one thing she mentioned was that I could have had a reaction to a stitch. Hopefully she'll know more after surgery, but it's very likely a clean it out and close it up thing.

So many little things to do to get ready..... keeping me busy. But tonight I'm just getting takeout and watching videos and relaxing....

Thanks, Hodaya
49 years old, female. Sick for way too long with Crohn's (or possibly UC) Proctocolectomy and permanent ileostomy in Feb 2011. Perineal wound taking its time healing, but otherwise feel better than I have in years. I only take vitamins now, no drugs at all!

Brian84
Regular Member


Date Joined Mar 2005
Total Posts : 456
   Posted 9/24/2011 11:49 PM (GMT -6)   
So Sorry to hear about this. I really hope that your surgery goes perfect and you get healed up soon and can get on with your life. And then when you are ready you can plan your trip back to Chicago and I can get a chance to meet you!

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 9/25/2011 5:41 AM (GMT -6)   
Sounds good Brian! And I hope your wound is completely healed then too.
49 years old, female. Sick for way too long with Crohn's (or possibly UC) Proctocolectomy and permanent ileostomy in Feb 2011. Perineal wound taking its time healing, but otherwise feel better than I have in years. I only take vitamins now, no drugs at all!

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 9/25/2011 5:42 AM (GMT -6)   
Thinking of you and praying that your surgery tomorrow is a success!
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.
New Topic Post Reply Printable Version
43 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Saturday, April 21, 2018 5:51 AM (GMT -6)
There are a total of 2,953,828 posts in 324,045 threads.
View Active Threads


Who's Online
This forum has 162112 registered members. Please welcome our newest member, onceforaday.
284 Guest(s), 6 Registered Member(s) are currently online.  Details
abb, Annastazya, C_G_K, Girlie, Casey_LB, mordant