2 weeks till colonotomy good news and bad

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Jackie_0mg
Regular Member


Date Joined Sep 2011
Total Posts : 427
   Posted 9/23/2011 11:06 AM (GMT -6)   
hey you guys its me my sugery will be in 2 WEEKS!!!! my school work is no where near where i wanted it to be smhair .....  so i plan to stay after school everyday next week. i personnaly fell like i have lost sight in my goals and i know that im slcking :/ .. Somehow it helps for me to talk A LOT about the sugery a lot of people at school now about it i decided that im probally gong to name my stoma (something german) because i stady that language [guten tag] to anyone who knows german :)
anyway mom still hasnt gotten a pet for me i might jus keep my grandparents or ask to just watch my neigbors dog during the day. im excitement keeps getting higher for some reason.
but the bad thing about it is im bleeding more iam taking inemas but im pretty confident that it wont stop before sugery so does that mean i will have to have the 3 step process? i hope not . thanks for reading ! smilewinkgrin

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 9/23/2011 11:19 AM (GMT -6)   
Hi Jackie,
Only your dr can decide how many steps it is. I'm glad you're being open with people about it!! That really helps.

I was just reading your question about whether blueglass's problem could happen to you, and no, it couldn't, because she has a permanent ileo and had her rectum sewn closed but it never fully closed. That's what's wrong. You aren't having your rectum sewn closed because you're going to use it again! Even if you did have a permanent ileo, that problem is super rare. That's why she's had such trouble fixing it.
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 9/23/2011 11:19 AM (GMT -6)   
Hi Jackie,
Only your dr can decide how many steps it is. I'm glad you're being open with people about it!! That really helps.

I was just reading your question about whether blueglass's problem could happen to you, and no, it couldn't, because she has a permanent ileo and had her rectum sewn closed but it never fully closed. That's what's wrong. You aren't having your rectum sewn closed because you're going to use it again! Even if you did have a permanent ileo, that problem is super rare. That's why she's had such trouble fixing it.
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

ByeByeUC
Veteran Member


Date Joined Feb 2011
Total Posts : 4541
   Posted 9/23/2011 12:39 PM (GMT -6)   
Hi Jackie- It doesn't necessarily mean you will need 3 step surgery because you are bleeding. It's really just up to your surgeon...he/she will know what's best for you so try not to worry. I was bleeding pretty bad right up to the day I had surgery and I was able to have 2 step surgery.

Hope you get your pet! Good luck!
Marianne

DX UC - in 2005 when I was 37
Tried every drug-even Remicade-Tried diets-nothing worked
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC!!! Very happy with my results of this surgery!

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 9/23/2011 4:28 PM (GMT -6)   
I just said what Stephanie said, but on the other thread....

Jackie, cut yourself some slack.... you are approaching a major surgery -- it's a big deal. No need to be down on yourself for 'slacking" -- you're sick that's why it's hard to keep up. When you're better it'll be easier. It's great that you want to do well and have goals....
49 years old, female. Sick for way too long with Crohn's (or possibly UC) Proctocolectomy and permanent ileostomy in Feb 2011. Perineal wound taking its time healing, but otherwise feel better than I have in years. I only take vitamins now, no drugs at all!

Jackie_0mg
Regular Member


Date Joined Sep 2011
Total Posts : 427
   Posted 9/23/2011 7:14 PM (GMT -6)   
thanks you all i wish i knew about this forum much earlier its like i have a whole-new family i just discovered !!!!! I <3 YOU ALL

Alibee
Regular Member


Date Joined Oct 2010
Total Posts : 286
   Posted 9/23/2011 9:06 PM (GMT -6)   
Go Jackie!! You can totally do it. Don't worry about keeping up completely, like everyone else has said, you'll be able to do so much better when you can focus because you aren't sick anymore. So for now, focus on getting yourself better. It might be a little tough staying on top of everything for a couple of weeks while you recover, but in the end it will be SO worth it. Be sure to keep us all posted!
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