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flchurchlady
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Date Joined Jul 2007
Total Posts : 2765
   Posted 9/28/2011 11:29 AM (GMT -6)   
I'm going on a Women's Retreat to Sanibel Beach this weekend (so excited!) and am sharing a 2 bedroom suite with 3 other women. We'll be spending 2 nights together and will be having coffee and breakfast in the room each morning. My stoma is usually very quiet, except for first thing in the morning when I'm having coffee and breakfast! These ladies don't know that I have an ileostomy, and I'm not sure what to do. Is there anything I can take (like Gas-X, Beano, or Imodium) that would keep my stoma from being so noisy? Or should I just tell them that I'm not "farting", even though it sounds like it, but that it's my ileo making that noise? I'm usually at home when it does it, so it's no big deal, but I thought I'd ask you all if you have any advice.

Thanks! :-)

Cece
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Ironmum
Veteran Member


Date Joined Oct 2010
Total Posts : 776
   Posted 9/28/2011 4:53 PM (GMT -6)   
Your trip sounds amazing!! what a lovely thing to do.. :-)

Well.. I would definitely 'tell all' to your new room mates and explain about your stoma and how it might make some strange 'farting' noises. You can bet if you try and keep it quiet or don't tell them, it'll be even more noisy ;-) I'm sure they'll understand and you can all giggle about it over breakfast. Have a lovely time x
Sarah - 39 year old mum of 2 boys, runner/triathlete from UK
June/Oct 2010 - Peritonitis/perforated diverticulitis. Sigmoid colectomy, temp ileo then reversed.
DX Colonic dysmotility.
July 2011 - Permanent end Ileostomy after begging surgeon to put it back
Follow my blog - http://bagthatruns.blogspot.com/

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/28/2011 7:22 PM (GMT -6)   
you could try some gasx first thing, or if you could get up a bit earlier and grab a few bites of something.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 9/28/2011 7:31 PM (GMT -6)   
Enjoy the retreat....I love Sanibel/Captiva.

To keep your anxiety at bay just tell them...give the Readers' Digest version...lol

Of course you can try to do some things to help keep it quiet but as we know if does have a mind of its own sometimes too.

If you all are sharing the bathroom if there is only one in your unit, then you may want to take some precautions - deodorizer for the pouch, Devrom tabs etc. and obviously avoid foods that you know give you a stronger odor during that time away.

Have a great time!!!
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 9/29/2011 8:54 PM (GMT -6)   
Thanks for your advice! I think I will take Gas-X and get up early to nibble on some yogurt before anyone wakes up. It's just those first couple minutes when I eat breakfast or drink coffee on an empty stomach that it can be kind of noisy, and then it stops. There is an outdoor patio, so I could sit out there with a cup of coffee, too.

I have no problem telling people that I have an ileostomy, but I prefer to talk about it when it flows naturally in a conversation that has to do with dealing with an illness or having surgery or something like that. I work in a church office and interact with a lot of people, so that type of conversation actually comes up quite a bit.

I'm sharing a bathroom with one person, am definitely bringing the M9 drops, and am not going to eat any fish or onions! lol I'll have my laptop with me and will keep you posted on how it goes.

Thanks again! :-)
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 9/30/2011 6:53 PM (GMT -6)   
Just tell them then have fun. Rosemary

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/1/2011 12:44 PM (GMT -6)   
I just wanted to let you all know that everything is going so much better than expected! First, I ended up having a private bedroom and bathroom, which has been a wonderful blessing.

Then, the two other ladies who are sharing a room, got up really early, made coffee, and went for a walk. One of them is training for a 3-day, 60 mile walk for breast cancer, so she wanted to get 5 miles in before breakfast.

So, I was able to leisurely get up and have some coffee and yogurt by myself and not worry about my ileo being noisy. By the time they got back, I was already showered and ready to hang out and chat.

So, the three of us are chatting, and would you believe that one of them starting talking about a surgery that she had?!? Then the other one did, too, so I joined in a told them about my surgery. It was perfect!! They were so cool about it and handled it great.

I can't believe I allowed myself to worry. What's funny is the topic this morning was to trust God instead of worrying! Boy, did I need to hear that! smilewinkgrin

Thanks again for your advice! You guys are the BEST! Well, I'm off to go swim in the ocean and then meet up with some ladies for water aerobics at 3pm!

Cece
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 10/1/2011 1:36 PM (GMT -6)   
i've been away for the holyday. so glad you're having so much fun Cece :):)
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 10/1/2011 1:38 PM (GMT -6)   
Glad it's working out so well. Enjoy!
49 years old, female. Sick for way too long with Crohn's (or possibly UC) Proctocolectomy and permanent ileostomy in Feb 2011. Surgery for lingering perineal wound on Sept 26. Other than the wound, been feeling healthier than I have in years.

windy city
Veteran Member


Date Joined Dec 2010
Total Posts : 607
   Posted 10/1/2011 5:58 PM (GMT -6)   
I'm glad it worked out for you!!!!

I myself had my 1st hotel getaway just last weekend. Went out of state for a cycling century. I went with a friend and his coworkers. I had to share a room with 4 other women. So...my worries: I have to share a bed- can't imagine sleeping in bed with a stranger and something happen. I also worried about the stoma noises. Also, how do I clean my pouch, the sink is usually outside of the toilet. I was scared. But....all worked out.

To clean the pouch, I used the public toilet room that was by the check-in. Stoma noises, I'd just blanket. I didn't share a bed, asked for a cot. All went well. When we got up that morning, we were all chatting, getting ready for the race. Illness' came up in conversation and I spoke out. Come to find out, one of the women has a best friend that suffered from UC, went through the jpouch ordeal and the poor girl is still suffering 5 years later.

So, I worried for nothing. They were shocked how I manipulated the entire time. Now I know better.....And I had the BEST time!!!!!!!

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 10/2/2011 10:44 PM (GMT -6)   
Cece -- that is wonderful...so happy this retreat/vacation worked out so well for you. GREAT!!!
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 10/2/2011 10:45 PM (GMT -6)   
Windy...also great to hear your getaway worked out so well too!!!
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/4/2011 7:20 PM (GMT -6)   
Thanks you guys, and Windy--I'm so glad you had a great time on your trip, too!! :-)
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.
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