Suggestions for Ostomy supplies?

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MotherofTeenwithNoUC
Regular Member


Date Joined Mar 2011
Total Posts : 227
   Posted 10/8/2011 8:29 AM (GMT -6)   
Can anyone tell me which Brand of wafer, bag and stoma seal has worked best for them.  I know that it's trial and error. Currently we are using Hollister brand because that it what they used in the hospital. I have this huge EdgePark catalog, but even in speaking with the sales rep when placing an order, they don't really know enough about it  (One rep told me that I still had to use caulk when using the Eakin seals).  Then the stoma nurse said that was false.
 
My son won't use a wafer with no adhesive that requires an ostomy belt because he is afraid it wont seal well enough while he is at high school and is afraid of leaks.
 
Thanks!
 
MotherofTeenwithNoUC
14 yr old male, Diagnosed February 2011. Phase one of 3 stage surgery on 8/30/11, Total abdominal laprascopic colectomy and ileostomy. UC FREE! No more nasty meds!!!
Previous meds included: Remicade, 6MP, ,Poly-Iron, Canasa, Asacol 800HD, Colazal, Levsin, Pepcid,Sulfasalazine,Prednisone

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 10/8/2011 8:51 AM (GMT -6)   
From day one my husband used the 1" belt with his wafers. It provides extra support regardless if the wafer has an outer adhesive tape or not. He also uses the Ostomy Secrets underwear which have the extra panel for the pouch so it keeps it off his skin and likes them a lot. We live in Florida and find that much better than his BVD briefs he wore for years.

It is definite trial and error. If the adhesive does NOT bother your son and he likes that and feels more comfortable with it then he should continue.

My husband is now on a 3rd wafer as he used the Hollister New Image for 2 months and his skin reacted...then 2 months with the Convatech moldable wafers we really liked but didn't like the adhesive in that one either even though different mfgs. use different products in their adhesive.

He is now using Coloplast (?) Sensura tapeless with very good results.

Call the different companies and speak with their reps....they are the best ones to talk to as they are the most informed and they will ascertain which wafers to send as samples based on your conversation with them. We have had Edgepark since day one and been very satisfied with them as a distributor and ordering but the sales staff I would not rely on for information and guidance....definitely go to the source of the manufacturer themselves as their reps are better trained to assist you is my opinion.
 
He also has the NuHope support belts.  He does  not have a hernia but we got them for support for when he plays golf and if and when he will be doing things a bit more strenuous to help support and HOPEFULLY ward off a potential hernia situation.  We got a 4" and 6" belt. We got the comfort cool type.  FYI.

Post Edited (Another UC wife) : 10/8/2011 7:55:04 AM (GMT-6)


MotherofTeenwithNoUC
Regular Member


Date Joined Mar 2011
Total Posts : 227
   Posted 10/8/2011 8:53 AM (GMT -6)   
Thanks for the feedback.  My son is using Hollister New Image and has developed major skin infection after one month.
 
I will look up Coloplast and call their rep.
 
Thanks!!
MotherofTeenwithNoUC
14 yr old male, Diagnosed February 2011. Phase one of 3 stage surgery on 8/30/11, Total abdominal laprascopic colectomy and ileostomy. UC FREE! No more nasty meds!!!
Previous meds included: Remicade, 6MP, ,Poly-Iron, Canasa, Asacol 800HD, Colazal, Levsin, Pepcid,Sulfasalazine,Prednisone

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 10/8/2011 9:11 AM (GMT -6)   
I just noticed he is going to have a j-pouch ultimately???

Hopefully you will get this skin problem under control soon. My husband had hoped for a j-pouch but it wasn't meant to be for a lot of very valid reasons.

One thing I did learn from these forums even if the ileostomy is temporary you must care for it and do everything you can as though it was a permanent situation so you have the easiest time possible until such time it is no longer an issue and is reversed.

I have read some posts of people who have a difficult time and really dislike it altogether and can't wait to be rid of it and not possibly putting in the effort needed. For those months that you have it, you definitely need to do the best you can to make your life more bearable too and focus on the prize at the end of it all.

I honestly thought it was devastating news when I first learned on that surgery day before my husband even knew that this was going to be permanent and was very upset with God. Then I realized fairly soon how lucky he was to be cured and to have survived such a difficult surgery as things were much worse than anticipated. Once he woke up and in the days that followed to be out of that UC pain, anxiety, constant frequency etc. and off all those meds and knowing each day he was getting better and better then the j-pouch was less of an issue. Of course I apologized to God and was very thankful my husband was still around and we are making up for lost time and enjoying life and getting back into the swing of things and having no regrets. It is what it is.....as they say. By nature we are both optimistic people and have adjusted well and deal with the learning curves that come with this along the way. WE have no choice really so why be negative...won't change things that's for sure...lol.
Wife of 64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) & now pain free

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 10/8/2011 11:30 PM (GMT -6)   
You really do just have to experiment. I would recommend getting samples from all the manufacturers that your insurance covers and then keep trying different wafers/pouches until your son finds something that works. I have had great luck with Convatec, while Coloplast gives me heat-rash like irritation under the wafer. Everyone is different. I am a bit of an oddball in that I do use paste and a Eakin ring at the same time. My stoma is really squirmy and punches back my Eakin Ring after a while which exposes a little skin right around my stoma. My nurse recommended I put the tiniest bit of paste between the Eakin ring and my stoma as a bit of a caulk. Then I put the wafer on top. Works like a charm.
-39 years old
-Officially diagnosed with UC in 2006, symptoms since 1999
-Took Asacol, Rowasa, Canasa and various rounds of Prednisone, tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had mild/moderate UC continuously until severe flare in autumn 2010 which led to permanent ileostomy surgery 11/8/2010

CrohnieCJ
Regular Member


Date Joined Jan 2011
Total Posts : 423
   Posted 10/9/2011 12:08 AM (GMT -6)   
I can't offer much, but hope to gleen some info from your post as I have been plagued by leaks  eyes
 
I have contacted Convatec, Coloplast, Hollister & Dansac and all have been generous in their samples.  Edgepark also sent me some samples as they are my supplier through my insurance.
 
Really need to find what works for me because at the first of the year I am on my own until my deductible is met or I may decide to just purchase them myself at more than half the cost with some other companies.
 

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/9/2011 8:36 AM (GMT -6)   
I had an awesome stoma nurse who recommended a two piece wafer and pouch from Coloplast: wafer #2833 and pouch #13986 with ConvaTec Stomahesive paste #183910. That is all I have used from Day One, and I only change the wafer once a week and snap on a new pouch halfway through the week.

The wafer is an extended wear with built in skin barrier, so I put it on dry skin with some paste around the hole, and it stays on while showering, swimming, exercising, you name it! I've never had one leak in 5 years, so I couldn't be happier with it! :-)

The pouch is cloth covered, so you don't see the contents, and it has a velcro closure, which makes emptying really easy. I just tuck the pouch in my underwear and forget it's there.

I also use Hollister M9 drops for odor, which are the best!

Hope that helps!

Cece
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 10/9/2011 8:51 AM (GMT -6)   
I've done well w/coloplast sensura.... I switched to convex when I put on some weight, and I've had minimal issues. I like the bags the best -- easy to clean, and y skin is fine w/the wafer. I like the one pieces -- lighter, and no accidents at the join (I started w/2 pieces and am colored by some mishaps that were mostly about my inexperience).

I use the eakins, and I'm going to try what Blueheron says w/the paste, as I often have a very tiny bit of irritated skin right around the stoma; otherwise they work well.
49 years old, female. Sick for way too long with Crohn's (or possibly UC) Proctocolectomy and permanent ileostomy in Feb 2011. Surgery for lingering perineal wound on Sept 26. Other than the wound, been feeling healthier than I have in years.
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