I have come up with a Dr. Cook in California. Also a Dr. Kruschinski (sp?) in Germany comes up a lot. In the wonderful book about
adhesions by Karen Steward, 'Doctors: Bound by Secrecy, Victims: Bound by Pain', this doctor in Germany is the one who finally was able to treat her daughter's adhesions and give her her life back. However, I have heard conflicting reports about
his success rates. Some people do real well but others don't, just like with any other surgeon.
I am pretty sure my so-called IBS that I've had for nearly 28 years now is due to adhesions. I'm near Minnesota but still have not been able to come up with anyone in this area- within driving distance- who will even discuss the topic of adhesions. Doesn't seem to be anybody at Mayo. It should be a crime to refuse treatment to patients for something that could give them some quality of life. It is very frustrating for those of us who don't really want to travel long distances for surgery. Especially with so much so-called IBS, I suspect a certain percentage of these patients probably have issues due to adhesions and could be helped if someone was caring and willing enough.
It sounds as though the best success rates are from what is known as 2nd-look and even 3rd-look laparoscopy. This is where, in about a week or so after the initial adhesiology, they go back in and remove any new adhesions that have begun to form. These new adhesions are softer and removing them should leave behind less damage than the older ones removed at the prior surgery. Therefore, the chance for newer, problematic adhesions is minimized. But I don't expect this to become the SOP anytime soon with insurance being the way it is. They'd probably never go for it. That is why many surgeons who actually are willing to deal with adhesions require payment out-of-pocket. Plus I've heard that insurance probably doesn't give much coverage for adhesiology, no matter how extensive the adhesions which probably doesn't help us in our search for help with this debilitating problem. i.e., there is no motivation for surgeons to get involved in this sometimes risky procedure if they aren't getting properly compensated for it.
Anyway, on the off-chance that anybody knows of anyone in Minnesota who might be caring enough to help me with my adhesions, I'd love to know! I already tried a gyno who dealt with endometriosis which made me think he might be willing to deal with adhesions no matter what the cause but he wasn't interested in helping me one bit. He literally ran out the door.