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WHO ARE TOP ADHESIONS LYSIS SURGEONS IN THE US AND ABROAD

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Silent Lucidity
Veteran Member
Joined : Nov 2007
Posts : 625
Posted 11/9/2015 5:10 PM (GMT -7)
All my surgery has been open. My first was sub-total colectomy with end ileostomy. When I had my second, for j-pouch formation, it took over two hours of adhesiolysis, before they could start the actual procedure. I'm pretty sure it's adhesions that cause the periodic, brief, but very sharp stabbing pain, in random parts of my abdomen.
It feels strange to post on a thread started by someone that has passed on, very sad story with Rose, I hope she rests in peace.
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NiceCupOfTea
Elite Member
Joined : Jan 2010
Posts : 11009
Posted 11/10/2015 5:20 AM (GMT -7)
I've had two open surgeries. I dunno about now, but apparently when they did my second surgery there were no adhesions. If that was due to my surgeon's carefulness or whatever, then I'm grateful to her.


notsosicklygirl said...
That's truly heartbreaking. I am sorry that she is gone. I remember she would post about how difficult things were and a lot of people would say she was making things harder than they were, but I never thought that for a second, I always believed what she said and wanted her to find a way to get her life back. That's awful. I don't know how I missed it. I guess I don't come over to this side very often. :(

I agree, Rose got spoken to like a naughty child sometimes. Not gonna name any names - couldn't remember more than one or two even if I wanted to - but I did think it just wasn't helping her. I do also think she really wanted to get better, but at some point it was probably too late for anything to be done. Every surgery she had just seemed to make things even worse than they were before. Very tragic story. I wish I could have done something to help.
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KLN KAT
New Member
Joined : Mar 2016
Posts : 2
Posted 3/2/2016 3:44 PM (GMT -7)
Adhesions can form from injury, endometriosis or inflammation from an infection, and lapros too. The videos of my first 11 laps showed more adhesions each time they went in - some twisted and thicker than your thumb just from the last entry hole. They said I had endometriosis. My first major surgery seven years later was a vaginal partial hysterectomy caused an incredibly rare "classic filmy adhesion" to completely wrap around my bowel within hours of the surgery, just from the pressure of the procedure. My right kidney nearly died right after my 16th surgery from, you guessed it, an adhesion they couldn't take down that was 3/4 surrounding the ureter. It was too tight and close to the ureter and the 4 weeks of abnormally bad swelling compressed it so it backed up into the kidney. My kidney stills hurts every couple of days 14 years later as I get temporary obstructions every couple of days. Food is not able to go through the adhesion narrowed constrictions which causes swelling and inflammation that will cause even more adhesions. The pain and nausea daily are unbearable, but I do bear it. I'm still looking for a just a good diagnosis of adhesions causing these temporary obstructions because docs won't admit adhesions cause pain. I can't survive another surgery anyway so the next full obstruction will kill me (estimate 8 hours of lysis = bleed out). I don't want to ever wake up from that kind of surgery again anyway. I'm not expecting a cure, just palliative care so I can get through a day. Ironically, I should never have had the first surgeries. I am by far worse by orders of magnitude. My case is extreme, even for those who suffer ARD. I actually have PTSD from the torture I've gone through with the American medical system and their willingness to blame the patient and offer anti-depressants for a debilitating, agonizing condition they created with inappropriate surgery. I wouldn't reccomend surgery of any kind unless they don't use CO2 and they do use a barrier product. I've heard that turning from side to side every hour the first couple of days after any surgery will help keep the bowels from sticking together or to your organs.
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Barbie2you
New Member
Joined : Mar 2017
Posts : 3
Posted 3/20/2017 5:02 PM (GMT -7)
Has anyone on this thread had any success with abdominal adhesions. I'm desperate. Been battling this for 25 years
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suebear
Veteran Member
Joined : Feb 2006
Posts : 5698
Posted 3/21/2017 7:01 AM (GMT -7)
A friend of mine has had success with a specialist in Florida. As I recall she had to spend a couple weeks there and it was $$$. If you are interested, I will get the name of the business.

Sue
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Barbie2you
New Member
Joined : Mar 2017
Posts : 3
Posted 3/21/2017 8:10 AM (GMT -7)
Yes, I would definitely be interested in additional information. I was considering going to Germany before I found this thread. I'm a member of a FB group called, "let's find a cure for abdominal adhesions", and they talk a lot about the surgeon in Germany. I have not researched him outside the group before yesterday. Once I found this post, I have decided to do a lot more research if I can hold on long enough. The pain is almost unbearable again. Thanks for your response.
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suebear
Veteran Member
Joined : Feb 2006
Posts : 5698
Posted 3/21/2017 8:21 AM (GMT -7)
It's a non-surgical program to break up lysis. My friend who traveled there was constantly being hospitalized for blockages; after this treatment she no longer has to go to the hospital. They even taught her husband how to help her. She says they now have offices in other states, you might inquire if there is a location closer to you.

http://www.clearpassage.com/who-we-are/locations/gainesville-florida/

Sue
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Barbie2you
New Member
Joined : Mar 2017
Posts : 3
Posted 3/21/2017 5:18 PM (GMT -7)
Awesome. Thanks for the information. I will definitely look into this.
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