Posted 11/12/2011 3:15 AM (GMT -7)
Jackie, it gets easier with time. I'm in my 8th month with an ileo stoma and will get it reversed in Dec-Jan. But I have to recken with leaks still happening somethinges. It even happed in my sleep 3 times in the last week. The reasons is that the output is pancaking on top of the stom and liquid seeps out into the seal, which of course breaks through and then everything gets all over the place. I wake up right away, go in the bathroom, change it, and just go back to sleep. No point in getting emotional about it any more.
It pancakes, I think because maybe I didn't drink enough water, or the other night I ate tons of hummos and bread too late at night and the bag just got too full, and then last night I rolled over onto my stomach and was sleeping on my stoma, which doesn't hurt it at all, but it could cause a leakage.
I do remember being absolutely totally freaked out about in the beginning, it just seemed so out of control, but while I don't like the idea that I'm kind of changing my own diaper, I know it could happen at any time and I stay prepared at all times, like having a zippered case with me at all times, in my shoulder bag, with two pre-cut bags, eaken rings, gauze, oil-free neutral wet wipes and the baggies for getting rid of the old bag. Even tiny scissors in case the pre-cut hole is too small for whtaever reasons.
At some point, the leakeages (which almost never happen to me, the last week was an exception) become just a practical rather than an emotional issue and I just take care of it when it happens, whenever, wherever. I've been working my job for almost 7 months now, and there was only 2 leakages while I was so far while I was there.
The leak business really does sort itself out.