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Veteran Member

Date Joined Apr 2004
Total Posts : 992
   Posted 4/11/2005 5:24 AM (GMT -7)   
Hi! I'm Cleo,(short for Cleopatra, queen of DENIAL!) I am a mod. on the CD board and told Peter since I'm readin here I would mederate here to. I recognize a few peeps from the CD board. I figgered I'd intoduce myself and give you the short version of my probs. I'd like to hear yours too!
After 4 years of hospital visits and pain I was finally Dx after I obstructed. I had surgery to do damage control , remove the sigmoid and untie my small intestiine.(it was wrapped around an ovary and tied in a knot!) Damage was from all my past flares(you know ,the ones I had when it was all in my head!)
I had a total of 17 fistulas,1 fissure and a perforated abcess at the time of surgery.
My surgey was in JAN.and I now have a colostomy. I had a very hard time at first. Startin to adjust.
well that's the mini version! Hope to get to know you all better!
Life isn't like a bowl of cherries, it's more like a jar of Jalapenos... What you do today, might burn your "butt" tomorrrow!

Veteran Member

Date Joined Apr 2004
Total Posts : 1161
   Posted 4/25/2005 6:47 PM (GMT -7)   
i come bearing hellos and thanks for moderatings from the UC board. Im glad to see you on here, though not so glad that you have to have an ostomy too.

I had 10 years of its all in my head. Apparently bleeding out my bum just wasnt at all physical, i t meant i was mental case. It all started at 12 years old, so after years of pain, no treatment, no friends, thinking i was a freak of nature, i finally graduated from Notre Dame (no clue how i made it going to the bathroom 20 times a day) and went off to Boston. Where i finally saw a new gastro, who knew right away, and God Bless Beth Israel Deaconess Med Ctr is all i have to say. So i moved home for some help from my mom and after having to go back to the evil GI because of insurance, wound up worse (who could have called that one) and in the hospital, where once again, i was making it up. Darn me and my mental disease!

I went to U of Chicago where i had the first step of the j-pouch operation done on November 16, 2004. I had a pouch-vaginal fistula open a week and a half after (1% get it, dontchaknow?) they say from trauma from surgery (not CD), and two major blockages that kept me in the hospital off an on, mostly on, for the first month. Now the fistula, after much hemming and hawing, has apparently miraculously decided to heal, and if it stays that way for another month, i will be having reconnection surgery to hook me up to my new plumbing and rid me of Clyde, my beloved, but not-so-well-behaved temporary loop ileostomy. The adjustment was horrid, but its gotten better, and now 5 months and 1 week out, im doing okay. I am going to be 24 on May 24, the day after my tentative reconnection surgery, so ill be in the hospital, but i just cant think of a much better birthday present than a chance at a whole new life, can you?
It will always get better...always

J-Poucher; 1st step 11/16/04, 2nd step scheduled for 05/23/05...pouch-vaginal fistula...healed?!

I finally feel FREE!!!!

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Veteran Member

Date Joined Apr 2004
Total Posts : 992
   Posted 4/26/2005 4:49 AM (GMT -7)   
Glad to hear things are looking up! You are far too young to have to deal with all this crap.

I seem to stuck in a rut right now. If it can happen it will happen to me. I've decided that my life right now is one big test. How much can Cindy take before she snaps? lol Well I have a news flash for this DD, I'm tougher than it is .....so Bring It On!

Adjusting to the ostomy has been prob my biggest challenge. I have finally quit fighting the whole idea. Like that was gonna get me somewhere! lol Kinda late to buck the system now!

I sure hope your next test shows the same results! that's great! Good luck with your surgery! Time to move on and enjoy some life!
Life isn't like a bowl of cherries, it's more like a jar of Jalapenos... What you do today, might burn your "butt" tomorrrow!

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