Posted 4/9/2012 2:28 PM (GMT -7)
My husband has had Crohns for 25 yrs and had been postponing this surgery (total colostomy with an end ileostomy) for the past 3 yrs in hopes that a new treatment would be available. He had his colon and rectum removed, and his anus sewn shut this past Friday, so today is Day 4 in the hospital. They said he could possibly go home tomorrow since he's progressing really well, but he's still nervous and doesn't feel ready to go home yet; maybe another day/night in the hospital. He had a temp ileostomy 7 yrs ago for 3 mos. Recovery was about 8 wks and he worked for 4wks before having the reversal surgery. Recovery for that one was longer, an extra 4-6 wks due to an open wound from an infection he had prior to the reversal.
He preferred to have the stoma in the same location and surgeons didn't have an issue with that. I'm not sure about shape b/c he was told it would shrink/expand over the next 6 mos. His temp stoma was from a loop ileostomy and this one is from an end ileostomy, which I believe is much different. I could be wrong, but I also don't know what the difference would be.
His surgeon said there could possibly be 2 separate surgeries - the first to remove the colon and the second to remove the rectum and sew the anus shut. It really depended on what she saw during the colon removal surgery. If there was too much inflamation in the rectum, she would postpone that part of the surgery for 6 mos down the line. My husband wasn't so happy about a possible 2nd surgery, but there wasn't much he could do about that. Luckily everything looked good and he had everything done at once.
If you are offered an epidural as pain management during your surgery, I would recommend taking it. This is my husband's fifth surgery for his Crohns, but the first time an epidural was offered. He said this has been his least painful recovery post-surgery. During his last surgery (the reversal 7 yrs ago), his pain was never controlled and he was in the hospital for 10 days, all because he was still in pain. As mentioned, this is his 4th day in the hospital and they finally removed the epidural and his pain isn't too bad. The epidural was contained to the area that needed it most (his mid section), so the meds didn't affect his head too much. It's more soreness than actual pain now, and he absolutely hates the pain pills he's taking because it mostly affects his head, making him sleepy and cloud-headed.
Hope this info helps a bit and that you're feeling better soon.