My 15 yr old son had the 3 stage surgery. His first surgery was emergency surgery due to severe ulcerative collits that affected his entire colon and none of the meds worked- we tried them all.
In the first surgery (August 2011), they removed his entire colon but left the entire rectum and he had an end ileostomy. His second surgery was Dec 2011 and they formed the JPouch and removed all but an inch of the rectum to which the pouch was attached and he had a loop ileostomy.
His 3rd and final Takedown surgery was March 2012 and closed the Stoma.
I was reading your post to him... He told me that he had the same pain, achiness and urgency after the Takedown surgery, but said it tapered off and finally went away 1-2 after the surgery. He now has no pain, no achiness in the rectal area and no sense of urgency. He is back to school full time (3 weeks after his Takedown surgery) and can make it through the entire school day without going to the bathroom. He is only taking one Imodium a day in the morning with his breakfast. He still goes to the bathroom on an average 6-8 times a day but is only getting up once, maybe twice, at night.
I will never forget what he told me in the recovery room after his first surgery... "Mom, I can't believe how much better I already feel". His colom was so diseased that the Dr told us there was no medication that would have helped him.
He now takes NO medication except for an Imodium. He told me that he is so happy he had the surgery.
I wish you the best with whatever decision you make. There is nothing better than "quality of life" and my son had none for a year before his surgery. He does now
14 yr old male, Diagnosed February 2011.
JPouch phase 2 of 3 scheduled for Dec 23,2011..hoping to have Takedown by March 2012.
Phase one of 3 stage surgery on 8/30/11, Total laprascopic colectomy and end ileo. Previous meds included: Remicade, 6MP, ,Poly-Iron, Canasa, Asacol 800HD, Colazal, Levsin, Pepcid,Sulfasalazine, Prednisone..NOW..NO MORE DRUGS!!!