Did the ER a few Sat's back. The ER doc made my PCP call for second surgical consult appt to be moved up a month and she did it.
I have since communicated with her via email about
putting in a call for the ileoscopy test to be moved up a month from May 22 to much sooner. She emailed back that I am doing all she would do in my faxes, calls and emails to the second surgical consult.
BUT that is NOT true. I had tried myself multiple times to move the second surgical consult up to no avail. ONE call from the PCP and bingo, a spot
opened in the surgical consult's schedule the very next day.
If I went to the ER, the doc there would just put in a call to the PCP along with my request to move up the ileoscopy test THEN she would act on it. Issue is I have no energy to go to the ER. Being not able to eat I just need to crawl back to bed. My nutritionist is coming at one to make me more drinkable chicken, maybe she can put in a call for me to get the ileoscopy moved up.
Course if I get nauseaus or anything I would be at our ER in a minute. If this whole thing is found NOT to be stomal stenosis after the ileoscopy, then I have no clue what I will do. it will be written off as "functional" with no recommendation. BUT for now I have to believe that something will be found in the ileoscopy that can be fixed! HOPE SO!
I just have to also TRY and let go of the fact that the original surgery which necessitated the ostomy in the first place was found to be unneeded on review of the first surgery (sigmoid resection), so I need not even have gone down this road. This is such a nightmare.
ER is good idea. I may even just do it tomorrow if PCP does not call for second surgical consult. The issue with a wait of this long without being able to eat (since March11 due to stomal failure) is that you get weak then soon lose the ability to advocate for yourself as forcefully as you could. Maybe this is what they are counting on? Who knows what is in the minds of some medical people? The second consult and the GI seemed very in my corner, though, but at this point I don't even know anymore.
Post Edited (esoR) : 5/2/2012 10:13:59 AM (GMT-6)