Today I see the ostomy nurse because of this mess of skin I have under my wafer. This is all getting old now. I have literally kept trading one problem for another since I had my surgery in November, and it is really getting me down physically and emotionally. Right now I have a hernia on one side of my stoma, and a steroid-caused gully on the other side, due to muscle atrophy. There is literally nothing on the left side of my stoma but a layer of skin with a map of capillaries underneath. The muscle is not there. The surgeon's plan is to move everything to the other side in an effort to repair the hernia and shorten my very long stoma, without having to worry about
sewing it back in its original, paper-thin spot.
When I went to see the surgeon in mid-April, we scheduled my surgery for early-mid July, but that is because I wanted to finish out the school year and we have a planned vacation the first week in July. He would have done it right away otherwise.
Now I am back pedaling on my decision to have it in July, and am strongly considering having it sooner. First of all, I am completely run down and exhausted from this year, and pushing myself as hard as I did. I don't have much more to give at this point. Secondly, I am changing my appliance every single day again just to get to work each day. Lastly, and to me, most importantly, if I do wait till summer I will be in the same boat again in the fall that I was in in January, when I returned to work. I will be left with only about 6 weeks recovery time just in time to go back to school. If I "put it to bed" now, I can hopefully start a new year fresh with all of this behind me. Testing is over, all of the big stuff is over, the curriculum is mostly covered, and the only thing left are field trips, end-of-year matters, etc.
The big con for all of this are my remaining sick days, which are next to none. In order for this to take place, a committee would have to meet to approve more days for me, which means the surgeon would have to write a note, etc. I don't know if I am up for all of that either. I like to keep a low profile, and this year has put me in the limelight enough already.
Any thoughts out there?? I really value your opinions at this point, and since not too many people are aware of my full situation, it isn't easy to discuss with even friends.