Welcome, I'm glad you have found this forum. It has been a wealth of knowledge in the past couple of years since my surgery.
I too was a mystery case. Had diverticulosis of the entire colon, something that the doctors have never seen. Had 6 infections on the right side and 1 on the left. GI's weren't on board with removing my entire colon, just a resection. My kids peditrician referred me to a colorectal surgeon that he highly respects. I discussed my thoughts, we questioned each other's theory, this came down to my quality of life. I didn't want to be constantly cut and resected, probability was so great. I wanted it all removed, it wasn't functional anymore and my motility was so bad, sometimes was not having a bowel movement for 2/3 weeks. The right side was so scarred, the surgical team was stunned. This disease doesn't affect the rectum, so my ileostomy is temporary for further connection. My surgeon never removed an entire colon for diverticulosis, he was hesitant, discussed this with other surgeon's, called all my prior GI's, but I was confident that it needed to be done. In my future, I may come across doctors that may second guess this decision. I have never had a single doubt.
You weren't diagnosed with a particular disease, I can understand why you have confusion. I would be too if I had just 'dysmotility' and nothing concrete. I hope that the surgeon made the right decision, that he wasn't acting hastily. You suffered for years, didn't get better, tests didn't come up with anything, you couldn't continue on like this. Your surgeon might have thought of your best interests, your future considering your age, and the 'what could it be and where.' If your colon wasn't functional, this was the best outcome and leaving anything behind wouldn't be an option. A nonviable/diseased colon is not left in awaiting research. If parts of a colon are NOT diseased and viable, and you are otherwise healthy, that's another story.
Post Edited (windy city) : 5/18/2012 10:07:24 AM (GMT-6)