I know exactly what you mean about hearing from people after a couple of years. I'm hoping that the fact that most people have the surgery and move on means that most are successful and they don't need the message board to ask questions, etc.. I do personally know a young girl who had this surgery in 2001, (she was about 27 at the time) and she is doing great. She had a rough few months finding out what she could and couldn't eat, and after the first 6-8 months, she was still going to the bathroom about 6 times a day. I spoke with her about six months ago, and she said she goes just once a day now, but can eat anything she wants. She said she feels like she got her life back when she had the surgery. She (like me) had lots of GERD issues, and they're gone as well. If that went away for me, it would be amazing, but at this point, I'll be happy if I can poop....but not all the time!
I'm so sorry for your problems. I can't imagine how you must feel. Before you had the surgery, did you have all of the tests and everything indicated that everything worked except your colon? I've been told I have pelvic floor dysfunction as well as inertia, so I'm also afraid I'll have problems after surgery. Right now, about 90% of the time, when I take a large amont of senokot, it will clean me out, but it's such an inconvienience, and that 10% when it doesn't work almost kills me. The pain is horrible. I just don't want to live this way anymore.
I hope and pray you can find someone who can help you. You say that only liquid comes out; have you tried any laxatives (in small doses) since your surgery? Is your small intestine working, and not your rectum, or is the problem with your small intestine? Whatever the problem, I pray you can find some help. If I remember correctly, you're very young, and way to young to have to deal with these issues.