Well, Tuesday I went to Mt. Sinai where they easily determined I had a stomal stenosis that I knew I've had for 3 months. Not sure how my current place "missed" this BUT, I won't go on.
Right after Mt. S docs did finger check and I guess temporarily stretched the stoma, I passed gas like crazy and felt normal like I have not felt in 3 months.
But then when the stoma closed in again, I developed this serious pain in my lower right side in the Cecum area of my unused colon that had all the mucous in it on the CT scan. THEN at 4 yesterday Morning I was off to the hospital in the ambulance YET AGAIN! Severe spasms and pain like stool and gas TRYING to get out of my stoma but not. The spasms were so bad that I finally gave in and took the Dilauded offered by the ER. They hydrated me. THEN were going to send me home. I said everytime I take anything by mouth these horrid spasms start. A friend said it looked like labor pain type spasms only they were intestinal. So I called my PCP, the patient advocate, a social worker, then arranged for an IV later in the day at a naturopathic place. The ER Doc called Mt. S to see if they could move up the surgery but they could not.
FINALLY something must have clicked and they admitted me. THANK GOD. Dilauded is nothing you can stagger home on PLUS I needed about
4 bags of IV fluid. My veins are shot, but today I could slowly sip liquid, but I said without the IV's I will dehydrate. It is only a few more days til my surgery at Mt. Sinai so my thought was why can't I stay in the hospital and get the IV's and the pain meds. BUT NO, my local hospital had to send me home with no pain meds and certainly no IV's.
So the plan is IF I can stay out of the severe spasming pain I will be at home tonight, go to my PCP's office tomorrow for an IV, then Saturday I am being driven to Mt. Sinai 4 hour trip. A friend and I are staying over and I will be admitted Sunday as planned for Monday 6:30 a.m. stoma revision local to the stoma AND if needed big adhesion take down. I am terrified, BUT SO GLAD I FINALLY FOUND HELP! I cannot believe my current place has said this was all digestive (the surgeons there said that the GI who is right on says this is surgical). The stenosis of the stoma is SOOOOOO obvious.
So pray for me. More surgery and the resultant adhesions from that could kill me BUT I cannot go on like I am with a stoma that is not putting out poop so am having to live on clear liquids WHEN I can drink them and having all this pain. THis is NOT LIVING. So, I need to take the chance. I am going to Alexander and Adrian Greenstein in whom I have the utmost confidence that they will do the very best they can for me. The rest is up to my body and the grace of God. I am praying big time. Say a prayer for me and hopefully I will be back with you and my travel and all the things I love. Rosemary
Post Edited (esoR) : 5/31/2012 9:37:11 PM (GMT-6)