I'll try to explain some of the things that everyone's talking about
A j-pouch is when they remove your large intestine and connect your small intestine to your anus.
If you don't have UC in your rectum, then you can have your large intestine removed and get a j-pouch, which is a 2-3 step surgery. Before the final surgery to connect the small intestine to the anus, you would have a temporary ileostomy. But, once you're connected with the j-pouch, you would go to the bathroom normally and would not have an ileostomy with a bag.
A proctocolectomy is when they remove your large intestine and rectum, and you get a permanent ileostomy, which is where they pull the end of your small intestine through your tummy and a bag goes on top of it.
The way the bag sticks to your stomach is with a peel and stick wafer that has a hole in it for the stoma, which is the small intestine part that sticks out - it's about
the size of a small strawberry and resembles one, too. The bag snaps onto the wafer and has a velcro closure, so when you sit on the toilet, you empty the contents of the bag in between your legs, wipe the end, and re-velcro it.
To search the archives, type a word like "j-pouch" or "ileostomy" into the search bar at the top right of the screen under "Join Healing Well" and it will pull up posts containing those words.
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.I'm not a doctor, but I've been told that I look like someone who plays one on TV!