I put the second of our Convex wafers with bag on Bill last night after a shower. He would not take the shower "naked" without bag or wafer because he was afraid water or soap getting into the stoma would irritate it. I tried to explain it was no different than when we wash him up but he didn't believe me.
I took the advice on this board....changed it before the 3rd day to avoid possibility of leak....it was on about 2-1/2 days. I did notice that the convex wafer makes kind of a dark "bruised" ring around the stoma but I assume this is normal. He is wearing a belt with it to hold it tight against the body.
As for diet....yes, I do spoil him and he does have the eating habits of a child. But it is very hard to teach someone who has eaten only twice a day for his entire life to now try and eat a small bit of something 5-6 times a day. He has worked up to two bottles of water, one cup of coffee, and a glass of juice, kool-ade, or flat soda as fluids. So with each bottle of water being 16 ounces, he is now getting in about 48 ounces a day. I really try to focus on getting protein into him....last night was his second attempt at a sandwich: chicken salad on whole grain bread. He handled it okay although it took him over an hour to eat it.
We saw the oncologist: reversal can go forward in July. Then Bill can decide if he wants post-surgery chemo or not. They did a risk factor calculation: people in his age group with same cancer, staging, surgery, etc. Sixty-five out of 100 live five years with no recurrence of cancer. Twenty-nine will have a recurrence. Of the 29, those who DO have post-surgical chemo--about 13 will have five year survivals. So the doctor said it was up to Bill to decide if the side-effects are worth it. Chemo would be six months and he has choice of IV/oral every 3 weeks or strictly IV every two weeks.
The issue for Bill is quality of life. If chemo makes him as weak and fatigued as it did in February, then he would not be able to go back to his part-time job in August as a crossing guard. He would also not be very well for our daughter's wedding on November 7th. It will be an outdoor ceremony followed by a quiet dinner but he wants to be healthy enough to really enjoy walking her down the aisle and to have that one Father/Daughter dance.
I suggested that he start the chemo, see how bad the side-effects are and then if they are really bad, he could quit. I will support whatever he decides to do.
One post said Bill had to start doing his own wafer application. The problem is that the surgeon located the stoma below and to the right of Bill's navel. He cannot see it when he lies down. Standing in front of a mirror is difficult as well because of course everything looks "reversed" and he has difficulty measuring it. Add to that his trifocals and trying to stare through the right portion of the glasses, and well....it just doesn't work. It is far easier for me to do it for him. He is still too sore in the abdomen to even pull his socks on by himself or to bend over and tie his shoes. So we are okay with me just taking care of the applications until the reversal in July. I do hope he will be able to put on socks and shoes by himself soon though....hurts my back to bend over do it for him. LOL