Anyone familiar with or have past experience with the Turnbull-Cutait pullthrough procedure? I currently have a temp diverting loop ileostomy due to my Crohn's and an evil rectal stricture (was
open 1 millimeter at one point). I was having close to weekly dilatations under anesthesia for a year in order to keep everything "moving" so we decided to give my colon a break, have the ileostomy and try remicade / imuran. Prior to the ileostomy, I also had a surgeon try to
open the stricture doing a needle knife procedure, but that was not any more successful than the dilatations. So anywho, had the ileostomy in January, been on the remicade since February, and needless to say, the stricture is still there! The doctors figured that since there is so much scar tissue in my rectum, that the remicade wasn't going to change much but we still wanted to give it a whirl! Six months later, still with the ostomy, still receiving my remicade, and still having rectal spasms due to the stricture. I am really given 2 options here :
1. Try the Turnbull-Cutait Pull Through Procedure (that my surgeons here will not consider, but Cleveland Clinic will). Hopeful result from this would be that i have a properly working rectum again and no longer have the bag. I have read some research regadring this procedure but mainly for colorectal cancer patients. i do not see much reseach on those with crohns / rectal strictures.
2. A permanent colostomy - remove my rectum and the whole deal... perm pouch for life!
Any similar experiences, advice, or just opinions here?
Crohns Disease : diagnosed in 2004.
Rectal Strictures - weekly dilatations under general anesthesia for a year.
Mouth / Throat Ulcers --- booooo!
Current : Diverting Loop Ileostomy (Jan 30, 2012)
RX : Remicade, Imuran, Limotil, B12, Lexapro, Adderall, Ambien, and pain meds PRN.
Next Step : TBD
Post Edited (madamozelle) : 6/23/2012 11:31:09 PM (GMT-6)