Why are you on a forum if you do not want to hear about
real world information and/or problems? If all you want to hear about
is butterflies, rainbows, and fairies,... than why are you here? I can guarantee you there are a whole lot more than 5% of people who are unhappy with their jpouches. The failure - meaning excise or redo rate is at least 10%. And I know many many people who are very unhappy with their jpouches but still have them in place.
This poster is in the midst of a decision about
surgery and is very concerned about
her post-surgery life. But considering this poster was already not being told the full story by her surgeon, she sure deserves to know more before she makes a decision. Do you think she should not have access to a medical publication that explains the clinical treatment for the multitudes of various jpouch problems? Should she not be told she needs yearly scopes for cancer if she gets a jpouch? How could I in my human heart allow her to believe she could just "trade in" her jpouch for a perm. ileo like it was exchanging a sweater at the mall... as you have implied.
It truly is disheartening how you continue to belittle and mock someone who has gone through hell and double digit surgeries because of a failed jpouch. Your vehemence against mine and many other's health histories and complications has clearly blinded you from the fact that the poster was asking for information. And your attempt at preventing people from seeing real stories is quite biased. I am not anti-jpouch. I am pro-providing the full story so people can make complete decisions rather than powder coating things like you and many doctors do. One sided information, as you seem to be completely focused on, does not allow people to make educated decisions.
I have had FOUR ileostomies. And the only problem I have ever had with any of my ileostomies is a minor yeast infection. I have never had to have a stoma revision, I have no daily difficulties with my ileostomy, I have no limits with an ileostomy and any physical activities - including running half marathons, swimming, biking, I eat virtually anything I want, I do not live in fear of finding a bathroom, and wear normal attractive clothing. And your stating jpouches had more normalcy - guess that includes not being able to run a marathon or go on a long hike because of a jpouch like I just read on another forum, or not being able to eat lots of foods because of a jpouch. Is it YOUR opinion that a jpouch would leave you more normal because maybe you are not a physicallly active person, or your job allows you easy and often restroom access? But many others feel completely different, including a recent poster who chose a perm. ileo over a jpouch because he couldn't be running to a bathroom all the time in his current job situation.
The funniest thing about
all of this... you are posting criticism of people's real world health struggles... but you don't even have a functioning jpouch. amazing. Best I can figure, is you are very scared of what will happen to you after you actually have a jpouch and reading anything about
reality that isn't all peachy gives you anxiety. So maybe you should refrain from reading these forums as lots of people submit information about
their real world experiences and health challenges. Also I believe there is an option on ignoring posts from specific posters. Maybe you should utilize it.
Post Edited (ddd45) : 11/12/2012 8:11:20 AM (GMT-7)