Well, I'm starting to get closer to my second surgery, 40 days away (but who's counting?)... I'm having three steps so the second surgery is j-pouch construction, loop ileostomy, and removing most of the rectum (cuff remains for pouch anastomosis).
I'll most likely be having the surgery performed lapro again. My pre-op appointment is in a couple of weeks, but I was wondering if people who have had three steps (or 2 out of 3 thus far) could share what their experience was like. Is the recovery as hard (or harder?!) than the first surgery? Did you find your loop ileo was very different from your end ileo? Did you need to switch pouching systems? What about
the rectum removal -- do you actually feel healing pain like... in your butt? Is it painful to sit? Can you "feel" the j-pouch/do you have different sensations when you have to pass mucus? How long did it take you to return to work and exercise? How long did you have to wait before takedown? Did you have any different dietary issues with the loop ileo vs the end? If you still had inflammation in the rectal stump after step 1, did you feel an overall increase in energy/health from having the rest of the rectum removed?
Thanks so much, love you guys!
dx'ed UC pancolitis 5/12
past meds: asacol hd, VSL#3, apriso, rowasa, xifaxan, 6mp, cortifoam, pentasa, cimzia, canasa, butyrate, flagyl, cipro, prednisone, remicade, methotrexate, cholestyramine, cortenema
current meds: butyrate
step one: colectomy, end ileo 1/16/13
step two: j-pouch construction, loop ileo 5/1/13