Wow, those are crazy stories! I wish I could meet a j-poucher in real life. Weirdly a lot of my friends have an extended family member who has one (I'll be halfway through explaining the j-pouch when they stop me and say "Oh, I know, my aunt/cousin/grandma/etc has one") but no one local.
dx'ed UC pancolitis 5/12
past meds: asacol hd, VSL#3, apriso, rowasa, xifaxan, 6mp, cortifoam, pentasa, cimzia, canasa, butyrate, flagyl, cipro, prednisone, remicade, methotrexate, cholestyramine, cortenema
current meds: butyrate
step one: colectomy, end ileo 1/16/13
step two: j-pouch construction, loop ileo 5/1/13