Does anyone have a one stop shopping list of immediate post surgery foods to stock?

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Probiotic
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Date Joined Mar 2007
Total Posts : 2832
   Posted 4/14/2013 5:11 PM (GMT -6)   
My wife likes to prepare way in advance, and is on my case for such a list, and so far all my onlne and brochure sources are a sort of grab-bag of lists, indicating foods to avoid, foods to thicken output, foods to thin output, etc- I was wondering if anyone had a link or a pdf to a one stop shopping list of good immediate post ostomy surgery staples.

With UC I have been paleo / low carb because, for many/most years this has kept my symptoms and medication needs (steroids being mostly the only med I could ever tolerate anyway) at a minimum, but I realize that in the surgery recovery, certain high glycemic carbs are probably going to be helpful- even be needed, temporarily, as well as stuff like (unsweetened) applesauce.

i have another WOCN consult coming up and will take a notebook and build a list per their advice too.

Thanks.

Post Edited (Probiotic) : 4/14/2013 4:14:06 PM (GMT-6)


Pluot
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Date Joined May 2012
Total Posts : 2500
   Posted 4/14/2013 5:48 PM (GMT -6)   
My shopping list is here: itslikethisuc.blogspot.com/2013/01/gi-soft-round-up-or-too-much-free-time.html
Liz, 26
itslikethisuc.blogspot.com

dx'ed UC pancolitis 5/12

past meds: asacol hd, VSL#3, apriso, rowasa, xifaxan, 6mp, cortifoam, pentasa, cimzia, canasa, butyrate, flagyl, cipro, prednisone, remicade, methotrexate, cholestyramine, cortenema

current meds: butyrate

step one: colectomy, end ileo 1/16/13
step two: j-pouch construction, loop ileo 5/1/13

dgtracy
Regular Member


Date Joined Feb 2010
Total Posts : 90
   Posted 4/14/2013 6:04 PM (GMT -6)   
I printed that out a few weeks ago, alot of great info in there.
Diagnosed around 4/26/09
Temp - Ileostomy 3/11/13

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10559
   Posted 4/14/2013 6:05 PM (GMT -6)   
I just ate anything that was available in hospital. For some reason, I had a voracious appetite for at least two weeks after surgery. So I ate hospital food (grim) and Tesco sandwiches that my parents brought in every day, on top of 3 Fortisips a day. I was wary about fruit and veg and avoided ordering high fibre dishes off the menu, but apart from that didn't have a special diet.

Perhaps not advisable, but I didn't feel like it did me any harm. Output seemed normal and not excessive from the very start.

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 4/14/2013 6:18 PM (GMT -6)   
I recommend simple foods, Stouffer's meals are ideal in portion. For example, roast chicken or turkey, with mashed potatoes. Meat loaf is another. Chicken or turkey pot pies are yet another example. To round all of this out, you can easily keep bananas, applesauce, cottage cheese, canned soups on hand.

But skip chili, pizza, cookies, candy, nuts and the like until you know you can tolerate them, even if you want them in the worst way possible (we've all had cravings).

My post surgery meals once my gut calmed down (I was on liquids for 14 days), were the Stouffer meals and simple turkey/cheese sub sandwiches.

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 4/14/2013 7:40 PM (GMT -6)   
In the hospital I ate KFC mashed potatoes and gravy and muffins from starbucks, lol.
When I got home I wanted nothing but cheese ravoli from a nearby place we go to all the time. Something I never ate before. I also ate sandwiches and crackers and cheese. I tried pizza about a week after I got home, it was a mistake because it gave me horrible gas. I didn't try that anytime soon after that. Pretty much just eat what you want. Just avoid fresh fruits and vegetables and stringy meats. Also anything that causes a lot of gas, like fish or spicy things.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

ddd45
Veteran Member


Date Joined Mar 2009
Total Posts : 572
   Posted 4/14/2013 8:21 PM (GMT -6)   
look up GI soft diets. An easy way to describe it is anything you can cut with a fork.
So just think about all the normal foods you eat and like and then see if they pass the GI soft test. You will be shocked to find out that you will be able to eat a lot of variety by the time you come home.

also - if your wife makes casseroles.. have her make some in advance and freeze them. Then there is a healthy dish ready to go - for both of you - as you both will be recovering from your surgery!

ActiveUCer
Veteran Member


Date Joined Jul 2012
Total Posts : 1685
   Posted 4/14/2013 8:33 PM (GMT -6)   
Macaroni and cheese, mashed potatoes, soups, puddings, italian ice, popsicles, G2 (or some sort of sports drink/ electrolyte replacement drink, preferably low sugar), cheese, cottage cheese, yogurt
http://activeguts.wordpress.com/

Drug refractory UC
Colectomy with end ileostomy August 30th, 2012 - jpouch sometime
IBD related arthritis and peristomal pyoderm gangrenosome

Humira, finally off of steroids! Aiming to have Step 2 in August 2013.

Tried lots of drugs and diet, didn't work for me.

Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 4/15/2013 6:56 AM (GMT -6)   
Thanks, everyone, great suggestions. Pluot/Liz- that blog piece was good. As a low carb paleo-er too it is tough to fathom going the other direction suddenly, if largely temporarily but I can see that there's no reason for me to deny myswlf well cooked soft (but non gassy) veggies early on either. I do want to keeoavoiding processed foods of any sort as much as possible- for life- but an exception he or there while in hospital isnt going to end the world, vs having a blockage.
"In order to save the village organ, we had to destroy remove it" -- Doctor's Prescriber's proverb.

UCwhat?
Veteran Member


Date Joined Dec 2012
Total Posts : 1040
   Posted 4/15/2013 10:22 AM (GMT -6)   
As with everything else medical, no two people will be the same in what they can tolerate after this surgery. Also, your Doc may give you different guidelines than others give. The day after surgery I didn't eat until dinner, and that and next day breakfast were liquid only. After that I was moved straight to a low residue diet. That meant I could eat anything I wanted except raw fruits/veggies, nuts, seeds, popcorn, anything with skins and seeds, corn, celery...things like that. Most of which you've probably been told to avoid or be careful with for a while after surgery anyway.

Aside from that list, I really did eat anything I wanted and have had no problems at all. In the hospital and since being home I have eaten pizza, burgers, well cooked veggies, fast food, all the things on Liz's list...and so on. Eat all the protein you can, it helps in healing. I eat lots of meats, cheese, yogurt...stuff like that. It is just great to WANT to eat again!!
DX:6/12 Mild UP:got/kept remission w/1 Canasa nightly
MAJOR Flare began end of 11/12
Flex Sig 12/14/12:UC,mod/severe left side
Flex Sig 2/4/13:UC Severe into transverse colon
Prednisone refractory,little to no relief from enemas or Remicade
Proctocolectomy w/end ileostomy 3/13/13
Pathology showed Severe Chronic UC into right colon
10 mg Pred/day, tapering
My new,healthy life has begun & is great!

Pluot
Veteran Member


Date Joined May 2012
Total Posts : 2500
   Posted 4/15/2013 10:58 AM (GMT -6)   
yeah Pro, I should probably clarify that because of the severity of my flare I didn't eat fruits or veggies for several months before surgery either, so I was slower to reincorporate them than others can or should be.

My hospital and surgeon seem to be far at the end of the spectrum as far as conservative diets go -- I was told to stay on GI soft, which is way more restrictive than low residue, for 10 days after discharge, which meant 15 days post-op. Obviously others did not get that advice and have done fine, but I was coming from a very serious "scared of food" place and it was easier for me to go slowly (e.g. during my flare I once tried a 1/4 cup of mashed banana and it touched off extremely bad stomach pains and arthritis that lasted for about 36 hours, on top of normal flare symptoms).
Liz, 26
itslikethisuc.blogspot.com

dx'ed UC pancolitis 5/12

past meds: asacol hd, VSL#3, apriso, rowasa, xifaxan, 6mp, cortifoam, pentasa, cimzia, canasa, butyrate, flagyl, cipro, prednisone, remicade, methotrexate, cholestyramine, cortenema

current meds: butyrate

step one: colectomy, end ileo 1/16/13
step two: j-pouch construction, loop ileo 5/1/13

Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 4/15/2013 11:29 AM (GMT -6)   
Ok, thanks, UCWhat? and Liz. I am rapidly recovering right now from a uceris-induced flareup (go figure!) that peaked at up to 25 liquid D a day. Now with uceris out of my system, and rapidly tapering off the ored that I high dosed a few days thinking it was not the uceris to blame, I am rapidly regaining strength and can eat anything in my paleo collection again. So At least I wont be going into surgery terrified that Inwas gonna be emaciated before even beginning surgery recovery. But sounds like healthy calories in recovery simply shouldnt be a hassle after all.
"In order to save the village organ, we had to destroy remove it" -- Doctor's Prescriber's proverb.

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 4/15/2013 12:04 PM (GMT -6)   
I can't remember exactly when I was able to eat what in the hospital, but I know I that my small intestine woke up fairly soon and that by the last couple of days of my 5-day hospital stay I was eating sandwiches with turkey, and cheese, eggs, muffins, oatmeal, salmon, chicken and potatoes without peels. Once I got home I just stayed away from high-residue foods (the typical things on the no-no list like nuts, fibrous veggies, sausage with casings, mushrooms etc.) but I ate everything else. I ate lean meats like chicken and fish and even roast beef made in the crock-pot so it was very tender. I did fine with ground beef and had sausage without casings. I ate ravioli and other pasta, pizza without any veggies on it, rice dishes, muffins, cereals that aren't very fibrous like Chex and canned veggies like carrots, green beans and beets. I even went to Chipotle within the first couple of weeks after surgery and had a really basic burrito bowl with rice, chicken, cheese and a tiny bit of salsa. My doctors had me on a lactose-free and very strict low-residue diet during my severe flare in the hospital, but once I had my ostomy I was able to reintroduce dairy products right away with no issues whatsoever. One thing was that my appetite wasn't the greatest right after surgery, so I tended to eat pretty small portions of all these things.

I also was found to be protein deficient post-surgery which hindered my healing a bit. I had to eat a ton of protein so I tried to eat eggs, whey protein shakes with soy milk or regular milk, Greek yogurt, meat etc. every day.

As far as processed foods, remember that there are choices out there that don't have a lot of strange mystery ingredients. I ate a lot of Lundberg Farms risotto after surgery. It is a boxed meal, but all the ingredients are recognizable. Whole Foods has a lot of low-residue pasta etc. options that are not full of artificial ingredients (including some that were gluten free which I needed because I have celiac disease).

Also, I remember stocking up before surgery as well but it turned out it wasn't necessary because I loved going to the grocery store after surgery. My mom came from out-of-state for a couple of weeks after my surgery and once I got home it seemed that we made a trip to the store almost everyday just for fun. My surgery was in the winter, so a short trip to the store provided the perfect amount of walking for me. Plus, I had been so restricted on what I could eat... I loved walking the aisles and knowing that I now had so many options:)
-40 years old
-Officially diagnosed with UC in 2006, symptoms since 1999
-Took Asacol, Rowasa, Canasa and various rounds of Prednisone, tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had mild/moderate UC continuously until severe flare in autumn 2010 which led to permanent ileostomy surgery 11/8/2010
-Visit my blog at http://ostomyoutdoors.wordpress.com/

Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 4/15/2013 4:46 PM (GMT -6)   
Thanks Blueheron- every time you post details like this, you make me want to move up my surgery lol. Actually tried to the other day but they were booked solid. Looking forward to enjoying some old lost friend foods again soon.
"In order to save the village organ, we had to destroy remove it" -- Doctor's Prescriber's proverb.

ActiveUCer
Veteran Member


Date Joined Jul 2012
Total Posts : 1685
   Posted 4/15/2013 11:23 PM (GMT -6)   
Those little trips to the grocery store are really good for getting out and to get moving!
http://activeguts.wordpress.com/

Drug refractory UC
Colectomy with end ileostomy August 30th, 2012 - jpouch sometime
IBD related arthritis and peristomal pyoderm gangrenosome

Humira, finally off of steroids! Aiming to have Step 2 in August 2013.

Tried lots of drugs and diet, didn't work for me.
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