I am very relieved you are going back to the hospital. You have already been through so much! I am a little confused about
what intestinal tests were done on you. Your symptoms are exactly what I had with small intestine bacterial overgrowth (SIBO): nausea, vomiting, bloating, painful gas, chronic diarrhea, and horrible smelling excrement. The pain was outrageous too. I had malabsorption of vitamins B12, D and iron. I kept having UTIs also.
I tested negative for C-Diff and our hospital did not have the machine to test for SIBO so my doctor just went ahead and treated it with antibiotics. I did not respond to treatments with either Cipro or Flagyl. The good news is that symptoms improved within 3 days the first time I tried 1200 mg Xifaxin daily, the second time improvement was much faster. A pouchoscopy showed negative results for pouchitis but that is what is written on my chart. The treatment is the same.
The medicine is very expensive. My GI always gives me enough samples to complete the treatment. Otherwise I could not afford it. The manufacturer has a financial support program for patients with chronic infections. Your doctor should have their 800 number.
I also take VSL#3 Double strength twice a day. My insurance covers it. If it didn't, I would take Culterelle or Floriculture. I think both are available at Walgreens and they have the same bacterial strains. The probiotics encourage regrowth and balance of the "good bacteria" in your guts. The biggest improvement seemed to be from increasing my Vitamin D supplement to 6000 IU a day. I use a daily liquid vitamin B12 and iron. I am tested once a month. My results are still lower than normal but I have stopped having any UTIs.
Until you have stopped throwing up for at least 24 hours you may want to stay away from solid foods. My experience was that every time
i tried to eat something simple but solid I started throwing up again. We made homemade Gatorade popsicles, ice chips, and regular cheap not juice popsicles. Suck on them very slowly. Zofran does not work for me. Have you tried 25 mg Promethegan suppository? Even after the throwing up stops stick to clear liquids for a day: broth, jello, popsicles.
Next I graduate to eggs, toast, apple sauce, rice, and small amounts of banana.
The best pain relief was Norco. It is similar to Vicodan but without the
Tylenol. It is recommended for anyone with increased liver enzymes. I stop needing it as soon as the antibiotic starts working.
If you need peer reviewed published research to show your doc, just let me know. All but one of the five doctors I had in the hospital basically threw up their hands and said, "I give up." SIBO is real and it is treatable. The connection between extremely low vitamin D levels and infections is being strengthened every day as more research is being published in reputable gastroenterology journals. This is something very few GIs are aware of unless they teach at a medical university.
Please accept my apology for the length of this post.
Many wishes for a speedy recovery!
Diagnosed 1987 with lower left ulcerative colitis. Hospitalized often. Mega toxic pan colitis Dec. 1999. Perforated colon and total colectomy April 2011. First j-pouch surgery March 8, 2012. Six other damaged organs removed at that time. Ileostomy reversal June 26, 2012. First half-marathon Dec. 2, 2012!
Post Edited (Subzeromambo) : 5/4/2013 12:37:52 AM (GMT-6)