Oh man, what a day! They are jerking me around like chicken!!
I still think I am probably going home today, but it will be late. First the chief resident told me I would go home today. Then another resident came back and said my output was still a little too high, they wanted me to take Imodium and see if it decreased. Then my nurse came in and said I already had so much output in the morning (she claimed 600cc -- I think someone screwed up somewhere along the way) that it looked like I wasn't going to be allowed to leave... Then I moped around and napped for a few hours (during which time I had almost zero output because I took two Imodium already, which I almost never ever take), and when the chief resident came back he said: DON'T take any more Imodium, stick around a little longer, we'll probably send you home. It has gotten to the point where the rest of the team doesn't even come in to my room during rounds because there is nothing to see!
I am a total worry wart but I really do not think that I will dehydrate left to my own devices at home. I've been off of IV hydration for 24+ hours, most of them without Imodium, and am peeing copiously nicely colored urine. I have
been in danger of dehydration from high output before, I got myself to my doctor's office for IV, and I was fine. So... I'm really not scared.
Holding it in feels nothing
like the old rectal stump. It is very very hard to explain. Quite honestly (TMI alert
) I was lying in bed and I knew I had a pad under me so I actually tried to relax and see if anything would come out, and nothing did. It only comes out when I sit on the toilet. I must be REALLY well potty trained! Maybe something about
relaxing to urinate activates the same muscles. No idea. When I'm walking around/standing up it feels like I'm maybe a little more "in danger" of leaking, gravity I suppose, but it hasn't actually happened. Knock wood.
kc70, glad this is helpful... I laughed when I read your post and thought, I definitely haven't described this experience honestly if this made you LESS nervous! Kidding... This surgery was. so. hard. The first few days were probably the most sustained pain I've ever experienced. I know UC pain was worse, like scream out loud, but it was the kind of thing that came and went, whereas this was constant. It was also just plain uncomfortable. I was pretty much ready to murder everyone by the time I had had a tube up my butt for five days straight. Of course now it's pretty hazy so I'm like, eh, whatever, it's over!
dx'ed UC pancolitis 5/12
past meds: asacol hd, VSL#3, apriso, rowasa, xifaxan, 6mp, cortifoam, pentasa, cimzia, canasa, butyrate, flagyl, cipro, prednisone, remicade, methotrexate, cholestyramine, cortenema
current meds: none!
step one: colectomy, end ileo 1/16/13
step two: j-pouch construction, loop ileo 5/1/13
step three: takedown sometime