I'm facing a similar dilemma. I have scheduled and canceled ileostomy surgery about
one dozen times over the past three years including just this week. My primary concern has been as Karen stated, that I would be trading one set of problems for another.
In your case, if you have not already, I would recommend trying the Botox injections as they have helped some people. You want to be sure you've tried everything.
Having shared the concern about
gas, I can say that the unused colon cannot continue to produce gas if it is done as an end ileostomy rather than a loop. Stool can also bypass a loop ileostomy. Either way though, you will pass mucus and dead cells. If that gets to be your main problem, then you will still have the options of having the colon removed or the operation reversed. It's still been hard for me though, considering the difficulties and risks associated with a second surgery.
I think the conventional treatments for pelvic floor dysfunction failed in my case because I believe the condition was more iatrogenic, having years of watery (and often burning) stools from milk of magnesia use. That was for chronic moderate constipation that long preceded any symptoms of pelvic floor dysfunction. Ironically, I wouldn't have any problem with something more large, hard, and dry. I actually find mucus comforting in my current state and wish there were more. Liquid or gas I could not deal with.
Seeing the rate of complications and management of an ileostomy has me wondering which is worse, so I will be interested to see the responses here.
Post Edited (Jack Sprat) : 5/10/2013 5:35:37 PM (GMT-6)