Happy to chime in here esp. with somedude actively looking for my view as a frsh newbie. I am going through the adjustment phase of a gut traumatized by surgery- eg just had a few days of all liquid output after my second hospital dismissal, but I am noticing already a two steps forward one step back trend- and it's just 2 weeks since my surgery.
Somedude- NCOT clearly has extremely serious, chronic depression issues completely independent of the surgery. Surgery is a major psychological trauma and not just physical, but I think that unless you are suffering from major depression now, you'd best not make judgements about
coping with a life change such as an ostomy- or jpouch- on the basis of the reactions sof someone who is. I went into my surgery as an optimistic, upbeat person and have not found the ostomy to have much impact whatsoever on my self image, sense of optimism about
the future, or perceived ability to manage this as a relatively minor incovenience in a very active life. I still do not totally rule out doing a jpouch- I am now (following colectomy biopsies) considered 100% UC and am told I am no higher risk for pouch failure or pouchitis than anyone else- but my strong personal instinct right now given with how easy "the bag" is to manage is to not bother with the uncertainty of a jpouch. I also 100% understand why some just have to go for it. For me the risk of having urgency with a jpouch, or butt burn, and suffering through more surgeries- isnt worth it for me. I am very surprised at how the pouch is essentially invisible. With my stoma position, the major compromise iI will need to make (remember my obsession re. Beltline) is that I will need a stoma protector to allow the beltline to sit either right on, just below, or just above the stoma- no biggie though as I like the added benefit that a protector gives for sports, lifting heavy objects etc that couldt otherwise result in impact injury to the stoma.
Anyway, I am still at the very new stage but I have not yet had a single leak or near leak. Well, i had a leak in the surgery recovery room because the setup the put on in surgery was absolutely pathetic and whoever attached it made no effort to ensure a seal. Since then even 4 days of wear have been rock solid even after 1-2 showers a day.
For me the biggest downer of all is not that I now have a bag- like I say, I am almost shocked at how relaxed I was seeing the stoma and bag- I think reading these forums for months has inoculated me into feeling I already had one lol- rather it is the generic effect of major surgery in preventing me- for a couple months or so- from hitting the gym everyday, playing tennis, bike riding etc as I was just before surgery. But I know that time will slip by quickly enough and I am trying to catch up on other stuff that I never seemed to have the time for, as well as mark new milestones each day on walking- eg today a big round of a few blocks I think.
Oh, PS to somedude- onky you can know if you really want surgery. To be honest, I was hemming and hawing to the last second and half exoected that I would not be ale to sign the consent forms. The photos and biopsies of the colon gave me some piece of mind afterwards, almg with the fact that I had tried ALMOST everything under the sun (biologics, imuran, LDN, fecal therapy, multiple types of worm therapy, DMSO, radical diets, acupuncture and herbs, NAeT, you name it) and still was found to have active mild to moderate pancolitis on every endoscopy.... It was a huge energy drain essentially suffering frm 365/24/7 sunburn. I think if you ever get to thinking that surgery will be inevitable than your mindset changes. That happened to me enough to tilt the balance. Like suebear noted when she decided on surgery, I have noticed that too many vacation plans, or just day trips, planned recreation, and odd jobs around the house I keep putting off, are shelved or delayed because of flares, mini-flares, or just excess simmering. It became a farce to me, even though much if the time (unlike many on this forum) I felt great. I was low dose pred dependent to avoid being cnstantly in a flare, but even the low loses wouldnt prevent big flares here and there which , though I almost always knocked them out with heavier pred doses, took their toll. I was anti-surgery enough that if I could have stayed flare free on say 5 mg pred for life, I would have been content to risk that... Alas like I say, that wasnt enough, and I am now tapering through 2 mg and will soon be off that stuff for life most likely, good riddance.
Post Edited (Probiotic) : 5/16/2013 10:30:35 AM (GMT-6)