Posted 5/26/2013 8:36 PM (GMT -6)
Been a little bit...things are just continuing to spiral. I got yet again another blood clot from PICC line on Tuesday. I was in desperate need for fluids so nurse at PCP attempted IV. I let her poke 8 or 9 times, with three attempts in feet and nothing. They put in an IJ (jugular) line on Friday and I got a liter of fluids. I was hoping I'd be able to enjoy holiday, but instead I've been puking more than ever and having spasms in feet and ribs. As soon as anything is in me, the nausea is so intense and pain in belly just too much. I'm barely keeping down fluids, barely emptying bag, and barely peeing. I have NO idea what is causing this constant nausea/vomiting. My CR surgeon mentioned putting my feeding tube back in, but I'm still trying to get diagnosis for endocrine/kidney issues. I see new endocrine doctor Tues. I have now lost 30 lbs!!! since April 1st and although I'm still an ok weight, its only because I had so so much edema from not peeing and although I'm still not, I'm dropping daily. I have no idea what's wrong and truly think that I'm out of options as far as a doctor here being able to figure it out. They get frustrated and turn it on me, of course. I just can't continue to live like this. Any advice on what it could be...I know it's prob a far cry anyone can give me advice, but maybe I just needed to vent. Hope everyone is enjoying their holiday!