OMG I hear you about
the nurses not giving a **** about
cleaning the tail after emptying. When I had a clip bag instead of a velcro they didn't even turn back the edge to empty it... it takes three seconds... if I had known they were going to make such a mess I would have done it myself, even if I was hallucinating and half conscious!! I had a massive b fest with the stoma nurse about
how the regular nurses don't know what they're doing most of the time. I remember after Step 2 I wanted to change my wafer but I was too weak to do it myself. It was the weekend and the stoma nurses only work weekdays. The regular nurses kept offering to do it for me and I was like heeeellll no. It also drives me crazy when medical professionals call it a colostomy. At least say an ostomy if you want to generalize.
Sorry to hear about
the flush stoma
As your swelling goes down I bet it will stick out more!! Mine looked much more flush at first than it is now. I started off using convex wafers in the hospital but after a couple weeks the WOCN told me I could switch back to flats. Even if it doesn't turn into a perfect little stoma, you have takedown to look forward to pretty soon
Maybe you will inspire that tech to become a WOCN after he finishes nursing school!
dx'ed UC pancolitis 5/12
past meds: asacol hd, VSL#3, apriso, rowasa, xifaxan, 6mp, cortifoam, pentasa, cimzia, canasa, butyrate, flagyl, cipro, prednisone, remicade, methotrexate, cholestyramine, cortenema
current meds: none!
step one: colectomy, end ileo 1/16/13
step two: j-pouch construction, loop ileo 5/1/13
step three: takedown 7/31/13