2b ColonFree said...
it is a big decision. naturally and normally you have so many doubts and fears and that's very understandable. it wouldn't be normal or even human not to have fears. but only creating a stoma w/o removing anything is a minor procedure and gives you the chance to examine how it's like, if it helps you or not. my opinion is if your life is like you described it in your first post of this thread, i think surgery is your only option to have a better quality of life, Jack.
It is considered major surgery from my understanding. However, anything that keeps someone in the hospital overnight is major surgery in my opinion, and the thought of the hospital stay alone is terrifying for me. I just don't adapt well to change.
Many times, the things that aren't a big deal to most other people are to me. I just need the health and confidence to allow me to work a fixed schedule. It's not necessarily something I want, but I see no alternatives for surviving. At the same time, I don't want to have to worry about
a hernia from something as light as a couple of gallon jugs of water or a pot of water. I don't want to have to manage obstructions. That adhesive is going to feel very "icky" after a while, especially not being able to change it every day.
I backed out of surgery one time because I learned of the need for a catheter. I backed out another when someone said I could still develop some gas in the unused portion of the colon (which my surgeon said later I would not). The thought of a leak scares me. I've never heard of anyone who has not had a single leak. Occasional bouts of the burning acid is one of the main reasons I'm considering the surgery, and gas is another. Those adhesives seem ENORMOUS and cover over half of my abdomen, so that certainly does not help.
Otherwise, I go back and forth. One minute, I want it, and the next I don't. I'm driving the scheduling departments mad and myself even more mad. Just facing this decision is making me physically sick and nauseated and not wanting to live at all.