Both a perm ileo and a j pouch have their pros and cons so I would say that's pretty equal.
This is just my experience:
I knew I wanted a j pouch from the beginning. I had my ileo for 3 months and in those 3 months I was pretty unhappy with it. I had a lot of trouble with it because my stoma was flush to my skin so I had major skin breakdown. It was so painful. I tried all sorts of things to help it but nothing worked so I just patiently awaited my reversal surgery. Also, I just found it very time consuming and I was constantly worried about
it leaking. Maybe if I had a better stoma I would have had a better experience with it.
I have been very fortunate to have a really well functioning j pouch. It has been the closest to normal I have been since before my UC dx. I also have two family members with long time j pouches and they have done very well too. That alone helped me know what I wanted to do. It's so important to have a surgeon who is highly skilled with the procedure and who has done many of them.
I know a lot of people struggle with this decision to go forward with a j pouch. Do as much research on it as you can about
it. It has a very high success rate but if you are in the low percentage to have a lousy outcome, that isn't going to do you much good. Best wishes with your decision.
DX Pancolitis in 2005. Family history of UC.
Tried every drug-even Remicade & Cyclosporine (nasty!)-Tried diets-nothing worked-wanted my life back!
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC and no more drugs!! Very happy j-poucher!! :)
Post Edited (ByeByeUC) : 8/3/2013 2:40:17 PM (GMT-6)