Literally every new person who comes along and posts on this board has UC, not Crohn's.
I'm starting to feel like a unique snowflake in being a person with Crohn's who has a stoma. But it makes me feel weirdly uncomfortable.
But honestly, it does seem like stomas for Crohn's are dying out. I never come across anyone with a stoma on the Crohn's board either except once in a blue moon, and when I do they've usually had it for like 20 years.
So yeah, nobody will admit it to me, they just brush it off, but you're telling me that people with Crohn's and ileostomies don't post? Of course they would if they were out there, just like all the UCers do.
No offense guys, but I wanna speak to ileostomates who have either had them for 40 years or are facing the prospect of having them for 40 years, 'cos they're the only ones who might be able to understand my position and how I am feeling over this year. Again, no offense, but this has become pretty much the Temporary Stoma/J-Pouch board, neither of which are relevant to my situation.
I wanna talk about
how the prospect of having a stoma for the next 40 years makes me feel. Also, what might happen to my stoma in that 40 years, what to look out for, signs of Crohn's returning, etc. Feel like there is a case for this board being renamed as the J-Pouch/Temporary Stoma board, in fact. One good reason for doing that: I'll definitely
stay away... <_<.
Post Edited (NiceCupOfTea) : 9/7/2013 1:41:36 PM (GMT-6)