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Regular Member

Date Joined Mar 2005
Total Posts : 49
   Posted 7/15/2005 6:56 AM (GMT -6)   
I am looking for guidience. I have had crohn's for 13 years. It has progressively gotten worse. I am med dependent bigtime. I have has a resection for colon ca in 96'. I am now dealing with incontinence frequently. Just got back from Hawaii.  The first 6 days it wasn't bad.  But then wammo!!! Ipooped my pants a number of times. A couple of them were biggies. Good thing I had a sweater with me to wrap around my waist. I had to throw away my clothes. I have had 3 surgical consults in the last couple of years re: ileostomy I am avoiding things frequently ie: parties, gatherings, teacher confrences are a huge stresser. I am also at the point where I may be incontinent if I don't get to a bathroom "STAT". I know some of you can relate to this.  I have read TJanes posts. She seems very positive. The bag seemed to be the right choice for her. I am seeking quality of life confused   Can anybody give advice

Alexandria A.
New Member

Date Joined Jul 2005
Total Posts : 1
   Posted 7/17/2005 9:11 PM (GMT -6)   
While I can't tell you what to do I can tell you that today was the first day that I was truly thankful I had an ileostomy. I had surgery on the 6th of June after having fevers as high as 105, I was going to the bathroom 25-30 times a day, I had enlarged lymp nodes, I was just completely weak and exhausted. While the recovery period hasn't been easy for me and having an ileostomy takes some getting used to, to be able to go to church and not spend half the time praying that I won't have an accident is great. So is not running to the bathroom multiple times when at the store etc. As much as I resisted having an ileostomy I can't deny that my quality of life really is better. (I've had colitis since I was seven, I just turned 21, and for the last four years I've gone to the bathroom between 10 and 20 times a day usually closer to the 20). There were so many things things I was scared to do that I'm now looking forward to doing.

Hope this helps.

T Jane
Veteran Member

Date Joined May 2003
Total Posts : 785
   Posted 7/25/2005 10:47 PM (GMT -6)   

I hope things are getting for you.   Even though getting the bag is the best thing i have ever done for myself,  It may be a little harder for someone else to get use to.   It sounds like you are ready to get better and have a normal life.  Thats how I knew for sure it was the right thing to do.        I think you should talk to your GI and your surgen.   How I see it, is , how could it be worse than living in the bathroom, being in pain, feeling sick and tired and being down right misserable every day of you life.   Having the ostomy has completely given me my life back.   Hosestly I forget it is even there most of the time.   You need to plan this so if you do decide to have it done be sure you like where they will place the stoma.  I have heard of some peoples being right at their waist line or above their waist line and it seems to cause problems with thier pants.   I would do it again.  Everyone is different but my advice is if you want to enjoy life and living then you should really condsider having the surgery.   That is my advice to anyone who suffers from CD.  Five years ago my Dr.'s would say your to young to have an ostomy , lets try this and lets try that. You know the saying if I only knew then what i know now,  Well, I would have had the surgery five years ago.   Some dr.s  said even now I am young to have to have this.  But its like I told him, I am way to young to be stuck in my house sick as a dog every day of my life too.  I hate that I have this disease and have to have a bag , but in my eyes it is a no brainer.  I wish you all the luck in the world and I believe you will make the right decision for yourself.  your welcome to e mail me anytime.

I Just tell myself, it could be worse !!!
          "Even with a Bag!!!"

New Member

Date Joined Aug 2005
Total Posts : 3
   Posted 8/2/2005 12:49 PM (GMT -6)   
Hi.. I had to take predisone in my early 20's and just one of the side effects left my bladder in poor conditon..after seeing a dr and being told to lose 20lbs and walk a couple of miles a day..which I did..and still do walk did not help..I was incontinent..and during the day had to urinate approximately every 20 mins..had leakage..and during sleep, every hour on the hour I was up using the mother who has been studiing alternative medicine for many years suggest a herb called uva-ursi. I took this for 2 years and because it is all natural with no side effects..I had a series of x-rays done 9 months
after stopping the I can say my bladder is 100%confirmed by me and my sure is nice to know the pharmaceutical co's are not getting anymore of my money..Thanks
P.S. I do have other stories email me if you are interested.
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