I am sorry that you're still not doing well rosemary. I am surprised to hear you say you should have left things alone. It's frustrating when you fight so hard to try to improve your quality of life and you end up wishing you hadn't bothered. :( I really wish there was something more than could be done but it sounds like, with a short bowel, you're stuck. Is there such a thing as a transplant? I think in your shoes, I would be scared to do anything at this point. What are you going to do? have you been given options?
I did a search and found this: transplants.ucla.edu/body.cfm?id=73
Have you ever heard of this? I havent... It sounds like you're eating soft foods now? That's gotta be an improvement over how things were before, no?
Co-moderator: Ulcerative ColitisDiagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: 6mp (25mg) + Lialda (2400mg) + Canasa (1g PM)